Monday the 16 July was the first day for consumers to opt out for My Health Record. This year you will get a My Health Record unless you opt out during the three-month period from 16 July to 15 October 2018. My Health Record is an online summary of your key health information. When you have a My Health Record, your health information can be viewed securely online, from anywhere, at any time – even if you move or travel interstate. You can access your health information from any computer or device that’s connected to the internet. You can find out more about My Health Record and the details for opting out here.
Donna Sedgman from the Australian Digital Health Agency will be joining the Health Consumers NSW for a Facebook Live session on Thursday 19 July at 2:30pm. The session will look at the benefits and risks of My Health Record. You can find out more details about the event here.
The Australian Commission on Safety and Quality in Health Care has developed a Guide for measuring and evaluating partnering with consumers. The purpose of the guide is to provide an overview of the key concepts and issues that should be addressed when measuring and evaluating consumer partnerships and to inform the development of evaluation and monitoring plans for the Partnering with Consumers Standard. The guide is designed to be used with the other guides and workbooks that have been developed for the NSQHS Standards, and provides more specific information about monitoring, measuring and evaluating the Partnering with Consumers Standard. The guide does not provide information about evaluation theory or research methodology. You can download the guide here.
HCA, in partnership with SA Health's Safety and Quality Unit, hosted a consumer forum on Public Reporting of Health Data last Thursday 5 July 2018. Eleven people attended, including representatives from consumer organisations, mental health, a Local Health Network and a research organisation. The objective of the forum was to provide consumers with the opportunity to identify:
key principles of public reporting of health data
what data they would like access to
how data should be made accessible to the public and how often.
This was the second of two consumer forums on public reporting, the first forum was held for consumers who are actively engaged in Local Health Networks. A report is being prepared and will be made available through our eNews and website in the coming weeks.
Commencing Monday 1 October 2018, Meningococcal B vaccinations will be available in a phased implementation, starting with an infant program for babies aged six weeks to less than one year, and a childhood catch-up program for children aged one to four. You can read more about the program and implementation here.
Friends of the Alliance is united by a passion for improving the health and well-being of the people of rural and remote Australia. Friends is a network of people and organisations that support the objectives of the National Rural Health Alliance, Australia’s peak non-government organisation for rural and remote health. The Vision of the National Rural Health Alliance is “… good health and wellbeing in rural and remote Australia”. Friends of the Alliance has created a new membership category for health consumers and carers at no cost. You can find out more below.
Thursday 2 August 2018
10.30am – 11.30am
The National Disability Insurance Agency is hosting a webinar on self-managing NDIS funds. The webinar will deliver information and insights about what self-management is, how to self-manage your NDIS funds and your responsibilities as a self-manager. The format is interactive and targeted towards participants, families and carers who want to learn more about what’s involved in self-managing NDIS funds. You can find out more and register here.
Wednesday 8 August 2018
10.00am – 12.00pm
Adelaide Convention Centre
The Australian Medical Research Advisory Board is seeking reflections on the original Medical Research Future Fund (MRFF) Priorities, and input to ensure the 2018–2020 priorities accurately reflect strategic research investment opportunities. The public forum will provide participants the opportunity to reflect on the first set of MRFF priorities, and make comment on how the next set of priorities should extend or reset the direction of the MRFF. You can find out more and register here.
Monday 17 September 2018
9.30am – 5.00pm
Southgate Institute for Health, Society, and Equity at Flinders University invites consumers to join leading international and national experts in a discussion about the current state of Primary Healthcare, and future directions. The will be a discussion panel involving the key movers and shakers in primary health care. You can register to attend and find out more here.
Wednesday 1 August 2018
10.00am – 3.15pm
The Science of Healthy Ageing - A Frailty and Healthy Ageing Research Showcase will present the latest healthy ageing research being undertaken in Adelaide. It will be presented by the leading researchers and students in this area. Participants will have the opportunity to engage with the researchers and ask them questions. Lunch is provided and registration is free. You can find out more and register to attend here.
Tuesday 7 August 2018
Robinson Research Institute
The 2018 Lloyd Cox Memorial Lecture: The reproductive revolution and how it changed science, sex and society is hosted by the Robinsons Research Institute and will feature Prof Norman as special guest speaker. The lecture will discuss ethics, clinical practice and consumer demand for reproductive technologies, and will also open a window to the future, and discuss how further advances will impact individuals and society as a whole. You can find out more and the lecture series and register to attend here.