Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

Latest news

State Budget Health Summary 2017-18

HCA attended the State Budget briefing in June. You can find our summary of the health budget here:

 State Budget 2017 -18 HCA Summary

Transforming Health, InDaily part 1

Has the biggest overhaul in the history of South Australia's health system worked? In the first of a two-part series on Transforming Health, InDaily explores what SA Health has to show for it. The opening of the new RAH and the closure of Repatriation General Hospital will conclude the service moves and Transforming Health will officially end. The ongoing review and improvement of models of care will continue to ensure that services remain contemporary. See the full article here.  

HCA brochure now available

HCA is pleased to release our new brochure, designed to promote awareness of our organisation and our services. The key messages include who we are, which services we provide, and how you can become involved with us. You can view and order the HCA brochure here.

SA health strategic action plan with carers 2016-2020

The SA health strategic action plan with carers 2016-2020 has been released.  The action plan is designed to examine key issues and identify priorities relevant to partnering with carers and the community. You can view the document here.

The Mental Health Show: new radio show by Mark Aiston

Monday 10pm on 101.5 Radio Adelaide 

The mental health show is all about demystifying mental health. During the show issues are discussed, concerns are raised and solutions are offered. Each week an expert from the field is invited to the show, to discuss the latest research details about  their area of expertise. Inspirational stories will be shared with the aim that struggling listeners may feel hopeful. You can find out more and listen to past episodes here.


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Events

Updated National Palliative Care Strategy consultation workshops 

Wednesday 30 August 2017

1pm – 4pm

Consultation is open for the draft updated National Palliative Care Strategy. Face to face feedback is invited during a workshop to be held at the Mercure Grosvenor Hotel Adelaide, 125 North Terrace, Adelaide. You can view the draft strategy here. Online feedback is also invited through an online survey, you can take the survey here. Find out more and register here. 

Balance Awareness Week

Monday 18 – Sunday 24 September 2017

This year’s Balance Awareness Week campaign aims to open the discussion and raise awareness of the issues and challenges people experience with balance and other related disorders, and how they have overcome them. The campaign called ‘Do your best flamingo… share your story’, invites those with lived experience to share their stories about how they rebalanced their lives after being diagnosed with one of these disorders. You can find out more and share your story online here.

Frailty & Healthy Ageing Research Showcase

Friday 8 September 2017 

The Frailty & Healthy Ageing Research Showcase will present the latest research taking place in frailty and healthy ageing. Participants will have a chance to find out about the latest technological advances, and will be given critical insights across a full range of research. Registration is free and lunch will be provided. You can find out more and register here.

Healthcare in a person-centred era: communicating to improve outcomes forum

Friday 22 September 2017: Melbourne 

The Alfred Health General Medicine Unit and The Centre of Research Excellence in Patient Safety invites registrations to their forum: Healthcare in a person-centred era: communicating to improve outcomes. Join a group of transformational speakers, facilitators and local consumers, to discuss the impact, evidence, strategies and practicalities of providing person-centred care. You can find out more and register here.

 

 

Community Information Sessions about the new RAH

Want to find out more about the new RAH? Join a community information session in your local area and learn about the new state-of-the-art hospital and how the move is going to work. Midday and evening sessions will be held at each location. Find out more and register here.


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