Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

Latest news

New model of governance and accountability in the public health system

The South Australian Government is introducing a new model of governance and accountability in the public health system. A cornerstone of the new model will be the introduction of governing boards for Local Health Networks. There will be ten governing boards in South Australia, one for each of the four current Local Health Networks (three metropolitan and one state-wide), and six governing boards covering the six new Local Health Networks in Country Health SA. Hon Stephen Wade MLC has asked HCA to provide feedback on the Health Care (Governance) Amendment Bill 2018, as changes to legislation are required to implement the board governance structure.

The South Australian public health system will commence its transition to board governance with the appointment of board Chairs by 31 July 2018. You can find more information on the application process here. This is the first step in developing a robust, sustainable board governance model. Governing board member appointments will occur later in 2018, followed by training and induction in anticipation of boards being fully operational from 1 July 2019. You can view the Health Care (Governance) Amendment Bill 2018 and the second reading below. If you have any feedback on the amendment bill that you would like HCA to consider for inclusion in our submission, please email This email address is being protected from spambots. You need JavaScript enabled to view it..

Health Governance Amendment Bill 2018 UN (003)

Second Reading Health Care Governance Amendment Bill 2018 (003)

A new report is calling for an expansion of specialist targeted services for older Aboriginal and Torres Strait Islander people

The Australian Association of Gerontology (AAG) in partnership with the Aboriginal and Torres Strait Ageing Advisory Group (ATSIAAG) have released a report: Assuring equity of access and quality outcomes for older Aboriginal and Torres Strait Islander peoples: What needs to be done. The report summarises the proceedings and outcomes of the 5th National Workshop of the AAG and ATSIAAG, held in Perth on 7 November 2017. The workshop aimed to address the apparent inequities of access and outcomes for older Aboriginal and Torres Strait Islander peoples under the current aged care reform program, and suggest directions for the future. You can download the full report here.

HCA Forum: Summary Framework for the State Public Health Plan 2019 - 2024

Health Consumers Alliance of SA Inc (HCA) held a consumer forum, Summary Framework for the State Public Health Plan 2019 - 2024, on Tuesday 29 May 2018. The objectives of the forum were to provide consumers the opportunity to:

1. learn more about the draft Plan and the role of public health
2. share their views about what a healthier South Australia looks like to them
3. help shape the development of the draft State Public Health Plan, which will set the direction for public health and wellbeing in South Australia over the next five years.

The event report can be found below. 

The draft State Public Health Plan 2019 – 2024 is available for download here.

Public Health Forum Report

ROSA Stage 1 Historical Cohort Report

The Registry of Older South Australians (ROSA) is the product of the Health Ageing Research Consortium, which is a cross sectoral partnership of researchers, consumers, aged care providers and consumer advocacy groups. HCA is a consortium partner and co-chair of the consumer engagement group. ROSA is a unique data resource that will support evidence-driven decision-making to improve the lives of all South Australians accessing aged care service. ROSA was designed to monitor the health, service utilisation, medication use, mortality and other outcomes of people receiving aged care services in South Australia. You can view the first ROSA report below. 

ROSA Report 1

Engaging consumers in their health data journey

Consumers Health Forum (CHF) in partnership with NPS MedicineWise have jointly published a comprehensive report on engaging consumers in their health data journey. The report was generated through qualitative interviews, literature reviews, a round table discussion with key stakeholders and consumer representatives, and a nationally representative survey of 1,013 Australians.The overall results indicate that Australians want control over their health data and information. You can find out more here.


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Events

Public Reporting Consumer & Community Forum

Thursday 5 July 2018

9.00am – 12.00pm
Level 1/12 Pirie Street, Adelaide

This forum is seeking input from consumers and carers not engaged with Local Health Networks. The purpose of this forum is to discuss principles of public reporting of health data, what data should be available, and how it should be reported. Morning tea will be provided. If you would like to attend, please RSVP to This email address is being protected from spambots. You need JavaScript enabled to view it. or telephone: (08) 8226 2567 to find out more.

11th Australian Viral Hepatitis Conference

Monday 13 – Wednesday 15 August 2018

Adelaide

The 11th Australasian Viral Hepatitis Conference will be hosted at the Adelaide Convention Centre this year with the theme ‘No one left behind’. The conference is inspired by the 2030 agenda for Sustainable Development and its focus on inclusion and health for all. The program will showcase and critically examine ways to effectively reach everyone living with viral hepatitis, while being inclusive of their experiences and concerns. There will be presentations on the latest research and an opportunity to network with peers. You can find out more and register here.

National Suicide Prevention Conference 2018

Monday 23 – Thursday 26 July 2018

Adelaide

The 2018 National Suicide Prevention Conference will be held at the Adelaide Convention Centre. The focus of the conference will centre around quality - in research, practice and speaking about lived experience. The program has been designed to to focus on quality as the foundation to enhance implementation of suicide prevention at the community level. You can find out more here.

The Mental Health Services Conference

Tuesday 28 – Friday 31 August 2018
Adelaide

Early bird registrations are open for the Mental Health Services (TheMHS) Conference. The Conference aims to provide a platform for debate that challenges present knowledge and ideas about mental health care and current mental health systems across Australia and New Zealand. There will be presentations from both public and private sectors of the mental health community. The theme of the conference promotes collaborative research, practice, policy-making and education. You can view the conference brochure here and register to attend here.

Australian Psychosis Conference

Friday 14 - Sunday 16 September 2018

Sydney

The Australian Psychosis Conference will bring together researchers, clinicians, consumers and carers, with an interest in best outcomes for people with psychotic illness. The conference will have parallel streams, covering the latest research, discussions on best practice and treatment, and debate on how to encourage recovery. You can find out more here.


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