Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

Latest news

Your views will help shape HCA’s advocacy and election priorities

At Health Consumers Alliance of SA Inc (HCA), we work with our members and supporters to achieve our vision: Consumers at the centre of health in South Australia.

In the lead-up to the state election, we are seeking consumer and community views to help shape our advocacy and election priorities.

We invite you to tell us what matters to you. As a guide, we have listed some questions below that you may wish to consider.

Please can you provide your views by Wednesday 1 November 2017, via email to This email address is being protected from spambots. You need JavaScript enabled to view it. or post to HCA, PO Box 2248, Adelaide, SA, 5001.

Questions:
1. What should health services do more of for South Australians?

2. What should health services stop doing for South Australians?

3. Are there issues that HCA should influence more?

4. Are there priority groups of South Australians that HCA could be helping more?

Thank you for sharing your views, and for helping us to promote and strengthen the voices, wellbeing, rights and leadership of health consumers.

Asthma SA resources

 Asthma SA has recently launched a range of asthma-related resources for community members from Arabic, Vietnamese, Mandarin, Dinka & Nepali speaking backgrounds.The resources reflect the different information needs of these community language groups with varying levels of health literacy in relation to asthma basic facts, key daily asthma management, & asthma first aid. You can access the resources here

 

Medical Record and Date-Driven Healthcare

The Australian Commission on Safety and Quality in Healthcare and Independent Hospital Pricing Authority have developed an animation about medical records and date-driven Healthcare. The animation was created in consultation with clinical stakeholders and aims to raise awareness among clinicians of what clinical coding is, and how the medical record is used in this context. You can watch the video

 

Forum report on the draft Consent to Medical Treatment and Palliative Care Amendment Bill

HCA hosted a forum on the draft Consent to Medical Treatment and Palliative Care Amendment Bill on Thursday 21 September 2017. The objective of the forum was to gain consumer feedback on the draft bill. The report outlining the main themes and recommendations emerging from the forum is available below. 

Consent Forum Report

2017 HCA Members Forum Summary Report

HCA held the 2017 HCA Members Forum on Monday 25 September 2017, from 3.00 to 5.00pm. Seventeen members attended. The purpose of the forum was to provide an opportunity for HCA members to identify the priorities for HCA’s advocacy and 2017/18 state election platforms.

Eight priority issues emerged:
1. The consumer/health system interface
2. Rural and remote health
3. Service improvement through the consumer voice
4. Aged care and older people, and health care homes
5. Social determinants of health - the needs and health care of Aboriginal and Torres Strait Islander children, and high incarceration rates, were highlighted at the conclusion of the forum. So too was the need to change the culture of the workplace to ensure a consumer focus. There was also an acknowledgement of racism in health care.
6. Consumer and carer escalation of care
7. Medication management first response and polypharmacy
8. Access and navigation of the health system, including E-Health and information technology access.

You can find the Forum Summary Report below.

2017 HCA Members Forum Summary Report


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Events

Ageing Well Conference

Wednesday 22 – Thursday 23 November 2017

The Ageing Well Conference will highlight the leading transformational global trends and bring together international experts to explore the business innovation and social innovation opportunities. At the heart of the design and thinking is ensuring people in their 60’s and beyond have better choices that bring their life greater purpose and meaning, and more control in determining the choices available to them as they transition through life’s course. You can find out more and register here. 

Consumer forum on the SA Health Community Power Dependency Project

Wednesday 15 November
1.00 - 3.30pm

Following the state-wide power outage in September 2016, SA Health has developed an emergency plan to manage the impacts of an extended power outage. HCA is hosting a forum to seek consumer advice on the SA Health Community Power Dependency Project. The forum objectives are to give consumers the opportunity to review the proposed Power Dependency Strategy and messaging, and provide feedback on what to do to prepare for and manage an outage. You can find out more and register here. 

National Carers Week 2017

Sunday 15 October – Saturday 21 October 2017

This week is National Carers Week, a time to recognise and celebrate the outstanding contribution that Australia’s 2.7 million unpaid carers make to our nation. There are many ways to engage with the campaign this year, you can find out more on the website here. You can publicly pledge your thanks to Australia’s unpaid carers and let them know how much they count here.

Adelaide Mitcham Prostate support meeting

Thursday 26 October 2017

7pm - 8.45pm

The Adelaide Mitcham Prostate support meeting will provide an overview of prostate disease. The guest speaker is Dr Richard Wells, who is a urologist. You can view the event flyer to find out more here. 

Cancer Voices Challenge Bike Ride

Sunday 22 October 2017

Cancer Voices Challenge Bike Ride is on this Sunday, starting at 8am from Kensington Gardens reserve, Norwood Parade between Glynburn & Penfolds Rd. Ride into the beautiful Adelaide Hills with 20, 35 or 67km distance options. Cost of entry-wear yellow! You can find out more and register here. 


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