Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer centred care’’. The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences both positive and negative? What needs to change for health care to truly be consumer centred?

These videos share compelling stories from health consumers and carers about their experiences with the health systems and the lessons for making consumer centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time and how her treatment impacted on her and her family. Her elderly mother had a number of painful and distressing experiences and these experiences were due to a lack or coordinated care and occurred before, during and after her stay in hospital.
Sue offers her, and he mother’s, experiences to show how strategies of improved communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.
Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in home care and respite.

Natalie's Story highlights the frustration that a daughter faced with many aspects of the health system, when her fit energetic mum suddenly has a stroke and her dad becomes the main carer. She describes her elderly mother's negative experiences with at home, hospital and respite care. These experiences also had a negative physical and emotional effect on Natalie's father, who was her mother's full time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of peoples determination to overcome illness and the importance of enabling support from service providers
  • The lack of suitable respite care and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patients autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home not only for their own care and quality of life but also for the sustainability of our health care system 
  • More coordinated in-home care is required.

Latest news

March 2017: New RAH Update

The March edition of the RAH Update is now available. It includes a look at ‘Technical Completion’ and what that means. You can view and download the update below.

March 2017: RAH Update

CHF: Local communities crying out for more action on mental health, not more reviews.

The Consumers Health Forum of Australia have released a media statement calling for more responsive community health services which embrace mental health services designed with consumers, not more reviews. You can read the statement here.

CHF Blog post: After the Colloquium: Connecting Consumers.

The purpose of the colloquium, organised by the Consumers Health Forum of Australia, Mental Health Australia and the National Rural Health Alliance, was to provide the opportunity for consumers, particularly emerging advocates, to join a day of talking and listening about strengthening the role of the consumer in shaping health care. You can read more about the colloquium on their latest blog post here.

Lynch Syndrome Australia Report released

Lynch Syndrome Australia has released Lynch syndrome: Australia’s untold health story, a report that calls for a number of important recommendations to improve diagnosis, risk management and support. It draws on the findings of a world-first study of the lived experience of people with Lynch syndrome and outlines responses from the 251 Australian participants. You can find out more and download the report here.

 

First look inside the new Royal Adelaide Hospital

The new Royal Adelaide Hospital (RAH) has achieved Technical Completion, a significant milestone in the delivery of SA’s world-class new hospital. Over the last five years, the new Royal Adelaide Hospital (RAH) has taken shape over the Adelaide CBD skyline and now is your chance to take a first look inside. The virtual tour shows you through a range of key areas including the Emergency Department, patient bedrooms, the main public entrance on level 3 and car parking facilities. the new RAH will set a benchmark for hospitals of the future and continue the long and proud tradition of providing the best possible care for all South Australians. You can view the video here.


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Events

Preoperative assessment for elective surgery workshop

Tuesday 4 April 2017

The aim of the Preoperative assessment for elective surgery workshop is to develop a consistent, standardised approach to care. The workshop will be held between 2pm – 4pm at the Pavilion on the park. To register or find out more, email This email address is being protected from spambots. You need JavaScript enabled to view it.

Living well with pain: Consumer Symposium

Sunday 9 April 2017

1pm – 5pm University of Adelaide

PainAustralia in collaboration with South Australian healthcare consumer organisations is hosting the annual Living Well with Pain Consumer Symposium in conjunction with the Australian Pain Society’s Annual Scientific Conference. The symposium will bring the issue of pain management to the forefront for health professionals, consumers and other stakeholders in South Australia. If you live with pain or have an interest in in this area of medicine, you can find out more and register to attend online here. The full flyer is available below.

Flyer: Living well with pain

Introduction to Consumer Advocate Training: Nuriootpa

Tuesday 4 April 2017

Introduction to Consumer Advocacy training is coming to Nuriootpa this April. HCA provides training to consumers who have an interest in becoming health consumer advocates. The free training aims to assist participants to become an effective voice as advocates, and be active contributors in shaping the health system in South Australia. If you would like to participate in Introduction to Consumer Advocacy training to prepare yourself for a consumer advocate role, or as a refresher for established consumer advocates, you can find out more, including details about registration in the flyer attached below.

Nuriootpa: CAT Flyer

Modbury Hospital Rehabilitation Centre – Open Day

Saturday 8 April 2017
10am – 2pm

Consumers are invited to attend the Open Day at the new Rehabilitation Centre at Modbury Hospital. The Rehabilitation Centre is part of the $32 million investment in Modbury Hospital under Transforming Health and will enable the hospital to double the number of rehabilitation patients seen each year. The Open Day will include tours and demonstrations of the new facilities, a sausage sizzle and face painting. You can find out more here.

 

Consumer Advocates Network Meeting

Wednesday 3 May 2016

12.30pm – 2.30pm (light lunch at 12pm)

At each meeting of the Consumer Advocates Network, we include a specific topic for discussion or learning. The topic for the May meeting is medical records, followed by other meeting agenda items from 2pm. We welcome your attendance at the May meeting to learn about the Enterprise Patient Administration System (EPAS) and My Health Record, including:
• an overview of EPAS and My Health Record
• how EPAS and My Health Record relate to each other and records systems
• security and access issues
• managing Advanced Care Directives and end of life decisions.

You can register to attend here.

email us at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 08 8231 4169 for more information.

 


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