Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

Latest news

Senate Report on Transvaginal Mesh released

The Senate Report on The number of women in Australia who have had transvaginal mesh implants and related matters was released on 28 March 2018. Australia’s state and territory based health consumer organisations have welcomed the recognition of the extent and impact of harm to women, and the recommendations contained in the Senate report. You can find their media release, together with a joint media release by Pelvic Mesh Support Groups across Australia, and links to the Senate Report and further information here.

#hellomynameis Campaign

The “hello my name is” campaign was created by Dr Kate Granger MBE, a doctor in the UK who had terminal cancer. Together with her husband Chris Pointon, Dr Granger started the campaign in August 2013, asking frontline national health service staff to make a pledge to introduce themselves in future to their patients. She used social media to help kick start the campaign and created the hashtag #hellomynameis. Last week Health Consumers Forum of Australia (CHF) and The Australian Healthcare and Hospitals Association (AHHA) co-hosted the #hellomynameis Comes to Canberra Webinar, which you can view

Hospital-acquired complications information kit supporting safety and quality

The Australian Commission on Safety and Quality in Healthcare, in consultation with clinical experts from across Australia, has developed the hospital-acquired complications information kit. This kit has been developed to improve the safety and quality of health services, and outcomes for Australian patients. The kit also provides insights for consumers on health service activities relating to safety and quality. You can find out more here.

HealthPathways South Australia goes live

HealthPathways South Australia is a free online portal for GPs, practice nurses and other health professionals. It provides them with easy access to comprehensive, evidence-based clinical information, and local referral resources relevant to patient care. With the recent launch of HealthPathways in SA, consumers may see their health providers using this portal. More information and a video that explains HealthPathways South Australia is available here.

Appointment of new HCA CE, Julia Overton

HCA Board Chair Debra Kay PSM is delighted to announce the appointment of our new Chief Executive, Ms Julia Overton. Julia will commence in the role on 23 April 2018. Julia has spent the majority of her career working within the health system in South Australia, with a focus on the social determinants of health and equity. She is an experienced executive, having held senior positions within primary health services and Local Government, as well as management experience in small business. You can read more about Julia below. Julia is looking forward to working closely with our members and partners, consumers and communities, to strengthen the position of consumers at the centre of health in South Australia. 

Julia Overton Biography


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Events

Asthma Masterclass

Monday 9 April 2018
10am - 11.30am

Asthma Foundation SA, Hilton

Would you like to learn to live well with asthma? Asthma Masterclasses aim to increase your knowledge and confidence in managing asthma. Learning more about what asthma is and how to respond to symptoms will help you feel in control of your condition. Learn more about the medications, how to use them and when. We also look at worsening asthma, and teach Asthma First Aid. This is essential information for everyone with asthma, or those caring for others with asthma. You can find all training dates in 2018, Kids Asthma Masterclass details, and register to attend here.

Webinar: Difficult-to-treat and severe asthma - changing the paradigm

Tuesday 1 May 2018

7:00 – 8:00 pm (AEST)

NPS MedicineWise is hosting a webinar on difficult-to-treat and severe asthma. Many asthma sufferers experience uncontrolled asthma and poor outcomes, despite high-dose standard therapy. The webinar aims to explore new therapies which may improve the health outcomes for people who suffer severe asthma. An expert panel will convene for a multidisciplinary discussion on new therapies, and how to identify and manage difficult-to-treat and severe asthma. You can find out more and register here.

Webinar: Heavy menstrual bleeding: Delivering best practice forum

Monday 7 May 2018

9.30am – 3.00pm

The Australian Commission on Safety and Quality in Health Care invites consumers to participate in their upcoming webinar on the Heavy Menstrual Bleeding Clinical Care Standard (the Standard). The Standard was developed in response to significant variation in the rate of hysterectomy and endometrial ablation surgical procedures to treat heavy menstrual bleeding, as identified in both the first and the second Australian Atlas of Healthcare Variation. The webinar will provide participants the opportunity to learn more about the Standard. You can find out more and register to attend here.

7th Strong Aboriginal Children's Health Expo

Thursday 19 April 2018
11am - 3.00pm

Adelaide Entertainment Centre
 
SA Health DeadlyKidsSA, in partnership with Watto Purrunna Aboriginal Primary Health Care Service and Nunkuwarrin Yunti, is hosting this free expo in April. Aboriginal families are encouraged to come along for a day of healthy activities and information in a fun environment. Kids can complete the "My Deadly Health Journey" and receive a showbag! You can find out more and register to attend here

World Elder Abuse Awareness Day Conference

Friday 15 June 2018

8am - 4pm
Glenelg

This year's World Elder Abuse Awareness Day (WEAAD) Conference program has been developed with the theme around 'Prevention to Intervention'. The purpose of the WEAAD is to encourage communities to recognise the issues concerning abuse of older people, and for our society to create policies that promote dignity and respect for older people. The conference will demonstrate strategies developed and used by professionals in a variety of fields. You can find out more about the conference here.


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