Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

hca logo

Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

Latest news

HCA 2018 Election Platform

Health Consumers Alliance of SA Inc is the state’s peak health consumer body. Our members, partners and consumer advocates have identified priorities for action to ensure consumers are at the centre of health in South Australia. They want health policy based on evidence, research and consumer input at all stages to improve health outcomes and reduce costs. You can find the HCA 2018 Election Platform and Background below. 

HCA 2018 Election Platform

HCA 2018 Election Platform Background

HCA Board Chair participating in Collaborative Pairs Australia

Beginning soon as a national trial in Australia, the Collaborative Pairs Australia program is bringing together health providers and consumers to develop their teamwork skills, to lead change and improve health and wellbeing outcomes. The program will deliver leadership training to participants who enrol as consumer-clinician pairs in four regions, and support them to implement localised health service improvement and innovation projects. HCA Board Chair Deb Kay is one of the program facilitators. Deb is optimistic about the potential of this project to build the capacity and expertise of consumers and health professionals to work in genuine partnership. You can find more information on the program and Deb’s participation here.

HCA February 2018 Board Update

At the HCA Board meeting on 5 February 2018, members discussed a range of topics, including changes to Board membership, progress in recruiting a new HCA Chief Executive, and the HCA 2018 Election Platform. You can read the Board Update here.

Consumer Advocates Network Meeting

Last Tuesday we hosted our first Consumer Advocates Network (CAN) meeting for 2018. At each meeting of the CAN, we include a specific topic for discussion or learning. The topic for the February meeting was the SA Translation Centre, with guest speaker Jenni Carr. All members of the CAN network have completed our Introduction to Consumer Advocacy Training course. You can find out more about the training and scheduled training dates for 2018 here.

Oakden Response Plan Oversight Committee: February Communique

The SA Health Oakden Response Plan Oversight Committee was established in June 2017 to provide oversight and guidance to SA Health in implementing the six recommendations outlined in the Oakden Report. Following each meeting, a communique summarising the activities of the committee is published. The February 2018 communique has been published and is available to view here. You can view all available communiques here.


View all latest news


Latest eNews

Events

Inspiration for Innovation Symposium: The Health Priority Network

Thursday 1 March 2018

9.30am – 1.30pm
Torrensville

The Adelaide Primary Health Network (PHN) is hosting an Inspiration for Innovation Symposium at the Thebarton Community Centre, with the aim to encourage community members to join their Health Priority Network. The Network provides a platform to share ideas and work together to improve a person’s primary health care journey. The symposium will explore opportunities for improving:

• health promotion and health literacy
• mental health, alcohol and other drugs, and physical
health issues
• equity and access for Aboriginal and Torres Strait
Islander communities.

You can find out more and register to attend here.

Health Project Management Community of Practice

Wednesday 4 April 2018
5.30pm – 7.00pm
Adelaide

The Australian Institute of Project Management is hosting an event on health project management, the first event in a series. Registered participants will explore the challenges in project management in health. Guest Speaker Professor Judith Dwyer, Director of Research in the Department of Health Care Management at the Flinders University School of Medicine, will present ideas formed in the course of her working life in healthcare management. Participants will be encouraged to contribute their perspectives and stories following the presentation. You can view the event flyer to find out more below. 

Health Project Management Flyer

Working with people with lived experiences

Tuesday 6 March 2018
9.30am – 12.30pm
Hindmarsh

Participants of the working with people with lived experiences workshop will explore the current and potential role of people with lived experience within their services. It will also employ examples to highlight the complexities and the innovation in practice to help guide future direction in this area. There will be a focus on people with a CALD background. Please email your RSVP to This email address is being protected from spambots. You need JavaScript enabled to view it. or phone 8245 8100. More information is available on the flyer below.

Working with people with lived experience

National Disability Insurance Scheme information session

Monday 26 February 2018

5pm – 6.30pm

North Adelaide Community Centre

The National Disability Insurance Agency is running an information session to help people with disability, their families, and carers to:

gain information about accessing the NDIS
understand what may be included in an NDIS plan
prepare for their first planning conversation.

This session is for people who seek access to the NDIS or who already have gained eligibility for the NDIS. You can find out more and register here.

Closing the Gap Day 2018

Thursday 22 March 2018

The Northern Health Network invites you to join them for a celebration of Indigenous culture at Closing the Gap Day, to be held at the Adelaide Showground. The day is a free all-ages event which aims to bring together people from Aboriginal and Torres Strait Islander communities to share information and take meaningful action in support of achieving Indigenous health equality by 2030. You can find out more and register here.


View all events

HCA on Facebook

HCA on Facebook

HCA on Facebook

nothing about us without us