Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives.
There is a lot of talk about ‘’consumer-centred care’’. The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?
These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.
Theme: Co-ordinated care, communication and informed consent.
Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.
Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.
Her experiences raise a number of issues, including:
Theme: Holistic & individualised care, enabling support, in-home care and respite.
Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents.
Her experiences raise a number of issues, including:
The final Oakden Response Report is now available. It provides a comprehensive record of the work undertaken by the Oakden Report Response Plan Oversight Committee, on which HCA was a member. The committee was established under recommendations outlined in the Oakden Report It is intended to provide a complete reference point for policy documents and guidelines created in response to the Oakden Report recommendations for use by SA Health staff and staff of partner organisations providing services to older people in South Australia. The document contains details of the work of the Committee and its subcommittees and complete copies of all relevant outputs. You can download the document below.
Monday 20 – Sunday 26 August 2018
Next week is Be Medicinewise Week. The theme this year is ''Our Families Matter'', so it’s important to make safe and wise decisions about medicines and health. No matter what type of medicines you or your family take, it’s important to know your medicines. If medicines aren’t used correctly, the results can be serious. You can find out more about being Medicinewise here.
HCA’s Chief Executive, Julia Overton was invited to attend a morning tea held in SA Parliament House and hosted by the Pelvic Mesh Awareness Group. The morning brought people with lived experience together with members of parliament, industry experts and SA health. Thank you to the mesh affected women who attended and shared their experiences with us.
There is a SA Health Transvaginal Mesh Strategy in place now which includes:
- a free consumer support line 1800 666 374, staffed 9am to 4pm Monday to Friday
- establishment of The Consumer Advisory Group
- distribution of information via GP newsletters
- commencement of medical record audit
- establishment of The Executive Advisory Group and Clinical Reference Group.
You can find out more here
Carers SA has released its Strategic Plan 2018-2019. This is an important document which will guide their work over the next 18 months and has been developed with input from the sector and staff. You can view the Plan on their website here.
Closes: 5pm Monday 27 August 2018
The South Australian Academic Health Science and Translation Centre is inviting applications for Rapid Applied Research Translation for Health Impact Grants through a funding allocation from the Medical Research Future Fund (MRFF). This funding opportunity is presented in the context of the Medical Research and Innovation Strategy 2016 -2021 and Medical Research and Innovation Priorities 2016-2018, as part of the Medical Research Future Fund. You can find out more in the Terms of Reference and download an application form below.
Wednesday 29 August 2018
1.30pm – 3.00pm
HCA in partnership with SA Health invites consumers to attend an information session to learn about the draft Equity and Access in Health Care Policy Directive for SA Health. Participants will have an opportunity to contribute their ideas and feedback on the Policy.
You can access the draft policy here.
You can register to attend the Forum here.
If you are unable to attend the Forum you can complete an online survey here.
Thursday 13 September 2018
9.15am – 12.30om
Thursday 27 September 2018
10am – 4pm
The annual Disability, Ageing and Lifestyle Expo will showcase practical ideas, research and initiatives under the ‘My Life, My Choice’ theme. My Life, My Choice, is about empowering individuals, couples and families to ensure that they remain at the centre of decisions related to their needs and provide information about the types of services and supports that are available to them. You can find out more here.
Friday 31 August 2018
8.30am - 5.00pm
The 9th National Motor Neurone Disease (MND) Australia Conference is hosted by the MND Association of South Australia and will be held at the Grand Chancellor Hotel. The Conference will promote the sharing of expertise and understanding of MND nationally, with the aim to improve care and support for people living with MND, their carers and families. You can find out more and register here.
Wednesday 12 September 2018
1.00pm – 4.30pm
Healthy Cities Onkaparinga is hosting a forum with the aim to establish a Food Security Collaborative for Onkaparinga. Participants will have the opportunity to discuss and provide their input on what should be included in the design of the Food Security Collaborative. There will be guest speakers and presentations, information stalls and light refreshments will be served. You can find out more and register here.