Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

Healthcare is a profoundly personal experience that has immense public consequences. The care we get or don’t get affects our ability to lead long and healthy lives. 

There is a lot of talk about ‘’consumer-centred care’’.  The concept is a fundamental driver for change in the health care system. What can we learn from consumers and their experiences, both positive and negative? What needs to change for health care to truly be consumer-centred?

These videos share compelling stories from health consumers and carers about their experiences with the health system, and the lessons for making consumer-centred care a reality.

Theme: Co-ordinated care, communication and informed consent.

Sue’s story highlights the frustration that a daughter faced when her elderly mother was insensitively treated when admitted to hospital for something that appeared to be quite minor at the time, and how her treatment impacted on her and her family. Sue's elderly mother had a number of painful and distressing experiences, due to a lack of coordinated care before, during and after her stay in hospital.

Sue offers her, and her mother’s experiences, to show how improving communication and noticing the ‘small things’ can make such a huge difference to a person’s treatment and their recovery.

Her experiences raise a number of issues, including:

  • The importance of seeing the elderly patient as a member of a family, and understanding the need to communicate with carers.
  • The impact of poor and disrespectful communication and delivering important information unprofessionally.
  • The impact of a lack of compassion and concern, and a disregard for the need for informed consent.
  • No consideration of the emotional impact of surgery and the patient’s deafness.
  • No discussion of the discharge plan with family carers.
  • No follow-up care or seeking feedback.

 

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Theme: Holistic & individualised care, enabling support, in-home care and respite.

Natalie's story highlights the frustration that a daughter faces with many aspects of the health system, when her fit, energetic mum suddenly has a stroke, and her dad becomes the main carer. She describes her elderly mother's negative experiences with in-home, hospital and respite care. These experiences also have a negative physical and emotional effect on Natalie's father, who was her mother's full-time carer at the time. Natalie explains how a holistic, suitable and respectful approach to treatment and care would have prevented much of the distress and pain experienced by Natalie and her parents. 

Her experiences raise a number of issues, including: 

  • The positive impact of people's determination to overcome illness, and the importance of enabling support from service providers
  • The lack of suitable respite care, and the physical and emotional impact of inappropriate care
  • Insufficient consideration of the unique intellectual and social needs of each individual
  • The impact of poor communication and lack of respect for the role of family carers
  • The inability of providers to learn a task fundamental to the patient's autonomy and quality of life
  • The importance of supporting people to be safe and well in their own home, not only for their own care and quality of life, but also for the sustainability of our health care system 
  • The need for more coordinated in-home care.

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Latest news

Summary report for the Oakden Response Plan Oversight Committee released

The final Oakden Response Report is now available. It provides a comprehensive record of the work undertaken by the Oakden Report Response Plan Oversight Committee, on which HCA was a member. The committee was established under recommendations outlined in the Oakden Report It is intended to provide a complete reference point for policy documents and guidelines created in response to the Oakden Report recommendations for use by SA Health staff and staff of partner organisations providing services to older people in South Australia. The document contains details of the work of the Committee and its subcommittees and complete copies of all relevant outputs. You can download the document below. 

 Oakden Response Plan Oversight Committee Final Report

NPS MedicineWise

Monday 20 – Sunday 26 August 2018

Next week is Be Medicinewise Week. The theme this year is ''Our Families Matter'', so it’s important to make safe and wise decisions about medicines and health. No matter what type of medicines you or your family take, it’s important to know your medicines. If medicines aren’t used correctly, the results can be serious. You can find out more about being Medicinewise here.

Pelvic Mesh morning tea

HCA’s Chief Executive, Julia Overton was invited to attend a morning tea held in SA Parliament House and hosted by the Pelvic Mesh Awareness Group. The morning brought people with lived experience together with members of parliament, industry experts and SA health. Thank you to the mesh affected women who attended and shared their experiences with us.

There is a SA Health Transvaginal Mesh Strategy in place now which includes:

- a free consumer support line 1800 666 374, staffed 9am to 4pm Monday to Friday
- establishment of The Consumer Advisory Group
- distribution of information via GP newsletters
- commencement of medical record audit
- establishment of The Executive Advisory Group and Clinical Reference Group.

You can find out more here

Carers SA Strategic Plan 2018-2019

Carers SA has released its Strategic Plan 2018-2019. This is an important document which will guide their work over the next 18 months and has been developed with input from the sector and staff. You can view the Plan on their website here.

Rapid Applied Research Translation for Health Impact Grant Scheme

Closes: 5pm Monday 27 August 2018

The South Australian Academic Health Science and Translation Centre is inviting applications for Rapid Applied Research Translation for Health Impact Grants through a funding allocation from the Medical Research Future Fund (MRFF). This funding opportunity is presented in the context of the Medical Research and Innovation Strategy 2016 -2021 and Medical Research and Innovation Priorities 2016-2018, as part of the Medical Research Future Fund. You can find out more in the Terms of Reference and download an application form below. 

TOR: Rapid Applied Research Translation for Health Impact Grant Scheme

Application form: Rapid Applied Research Translation for Health Impact Grant Scheme


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Events

Equity and Access in Health Care Forum

Wednesday 29 August 2018
1.30pm – 3.00pm
HCA, Adelaide

HCA in partnership with SA Health invites consumers to attend an information session to learn about the draft Equity and Access in Health Care Policy Directive for SA Health. Participants will have an opportunity to contribute their ideas and feedback on the Policy.

You can access the draft policy here.

You can register to attend the Forum here.

If you are unable to attend the Forum you can complete an online survey here.

Planning Ahead Seminar

Thursday 13 September 2018
9.15am – 12.30om
COTA Adelaide

COTA SA is hosting a free Reframing Ageing Seminar about the financial, legal and health benefits of early planning for retirement and beyond. To register and find out more call (08) 8232 0422, 1800 182 324 (free for country callers) or email This email address is being protected from spambots. You need JavaScript enabled to view it. . You can view the program and find out more here.

Disability Ageing and Lifestyle Expo, My Life My Choice

Thursday 27 September 2018

10am4pm
Adelaide Showground

The annual Disability, Ageing and Lifestyle Expo will showcase practical ideas, research and initiatives under the ‘My Life, My Choice’ theme. My Life, My Choice, is about empowering individuals, couples and families to ensure that they remain at the centre of decisions related to their needs and provide information about the types of services and supports that are available to them. You can find out more here.

Motor Neurone Disease Australia Conference

Friday 31 August 2018

8.30am - 5.00pm
Adelaide

The 9th National Motor Neurone Disease (MND) Australia Conference is hosted by the MND Association of South Australia and will be held at the Grand Chancellor Hotel. The Conference will promote the sharing of expertise and understanding of MND nationally, with the aim to improve care and support for people living with MND, their carers and families. You can find out more and register here.

Food Security Onkaparinga Forum

Wednesday 12 September 2018

1.00pm – 4.30pm
Noarlunga

Healthy Cities Onkaparinga is hosting a forum with the aim to establish a Food Security Collaborative for Onkaparinga. Participants will have the opportunity to discuss and provide their input on what should be included in the design of the Food Security Collaborative. There will be guest speakers and presentations, information stalls and light refreshments will be served. You can find out more and register here.


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