As part of an inquiry into My Health Record, the Senate Community Affairs Committee (the Committee) has called for public submissions into My Health Record. HCA hosted a focus group on Thursday 30 August aimed at gaining consumer insight into My Health Record. We combined their input with the feedback we received from members of the Consumer Advocates Network (CAN) at the August CAN meeting to inform our submission. We would like to thank all consumers who participated. The My Health Record Consumer Consultation report is available below.
HCA hosted a focus group on Monday 30 July 2018 on behalf of the South Australian Ambulance Services (SAAS) on the Secondary Triage Service. The forum sought to gain consumer feedback on their experiences of this service, which was implemented during a peak demand period in 2017. Twenty-eight people attended the focus group (both consumers and carers) and provided varied feedback. HCA have provided a report to SAAS on the outcomes of the focus group which includes our recommendations about how to best manage this service in the future should it continue. You can read the full report below
HCA recently hosted two consumer forums in partnership with SA Health to address the following objectives relating to public reporting of health data:
1. key principles of public reporting of health data
2. what data consumers would like access to
3. how data should be made accessible to the public and how often.
Forty-three people attended and contributed their ideas. Participant feedback was overwhelmingly positive, indicating that the forums were well facilitated and that the forum objectives were met. Find a full copy of the reportrt below.
Health Consumers Alliance of SA Inc (HCA), in partnership with Adelaide Primary Health Network and SA Health, held Advance Care Directives: A matter of love, rights and self-determination, on Wednesday 18 April 2018, from 4.00 to 6.00pm. Approximately 110 people attended. Participant feedback was overwhelmingly positive, indicating that the objectives of the forum were met. Participants felt informed, empowered, and motivated to complete their own Advance Care Directives. The forum report is available below, and video recordings of the event will be available next week.
Health Consumers Alliance of SA Inc (HCA) held a consumer forum, Summary Framework for the State Public Health Plan 2019 - 2024, on Tuesday 29 May 2018. The objectives of the forum were to provide consumers the opportunity to:
1. learn more about the draft Plan and the role of public health
2. share their views about what a healthier South Australia looks like to them
3. help shape the development of the draft State Public Health Plan, which will set the direction for public health and wellbeing in South Australia over the next five years.
The event report can be found below.
The draft State Public Health Plan 2019 – 2024 is available for download here.
HCA hosted a forum on consumer experience of SA Health funded services on Wednesday 29 November 2017. The forum objective was for participants to establish an approach across SA Health that ensures community-based services funded through SA Health have a consumer-centred care focus. The report outlining the main themes to emerge from the forum is now available for download below.
The Parliamentary Committee on Occupational Safety, Rehabilitation and Compensation is conducting an inquiry into Workplace Fatigue and Bullying in South Australian Hospitals and Health Services. HCA was invited to make a submission in contribution to the inquiry. Studies have shown that health services working effectively and using a person-centred care approach can lead to improved workforce attitudes and job satisfaction, decreased emotional stress, decreased workforce turnover, and absenteeism and improved overall workforce wellbeing.
Read our submission here
In 2019 HCA will work with consumers, partner agencies and other stakeholders to develop more focused training modules for consumers on topics such as:
One of the changes of not having a core funding base is that we will now be charging for our training, including consumer training. Fees will be kept as low as possible, and opportunities for subsidised training will be made available to consumers who do not have the capacity to pay.
Back to eNews here
An international team of researchers led by SAHMRI-based epidemiologist Dr Azmeraw Amare has opened the door to more rapid mapping of the genetic foundations of mental health disorders. The global collaboration, that included SAHMRI and the University of Adelaide, found eight never-before-identified gene variants related to increased risk of depressive disorder, and more importantly, strengthened the evidence for genetic links between major depressive disorder (MDD), bipolar disorder and schizophrenia. Find out more here.
The South Australian Health Commission offers online resources aimed at helping maintain a mentally health workplace. One of the important roles of the Commission is to work with South Australian communities and leaders to strengthen mental health and wellbeing in the workplace. Investing in mentally healthy workplaces is a win-win for employers, workers, the economy and the State. Find out more here.
Wednesday 6 March 2019
11.30am - 2:30 pm
The Australian Commission on Safety and Quality in Health Care invites consumers to attend a workshop to provide input on the draft Second Edition of the Australian Charter of Healthcare Rights (the Charter). A consultation was undertaken in 2018 which sought feedback on how user-friendly and easy to understand the existing Charter is, and how it could be improved. This feedback has informed the draft Second Edition, which will be discussed in detail at the workshop. Feedback will also be sought on the types of resources participants would find helpful when using the Charter. Participants will be provided with introductory information and will be required to complete a short survey prior to the event. Lunch will be provided.
Find out more and register here.
Wednesday 27 March
11.00am - 3.00pm
Sonder, in partnership with the Adelaide Primary Health Network, is hosting the Closing the Gap Day at the Adelaide Showground. Admission is free for all ages. It aims to bring together people from the Aboriginal and Torres Strait Islander community to share information and take meaningful action in support of achieving Indigenous health equality by 2030. The event will also feature plenty of free activities for children, including a petting zoo, jumping castle, face painting and much more.
Find out more here.
Thursday 30 May 2019
The 2019 annual Choosing Wisely National Meeting will bring together policy makers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the Choosing Wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April.
Find out more and register here.
Wednesday 30 January 2019
10am – 12pm
HCA is hosting a focus group for the South Australian Health and Community Services Complaints Commissioner (HCSCC). The focus group aims to gain consumer feedback on their current website to ensure it is user-friendly.
You can find out more and register here.
Back to eNews here.
Thursday 21 February 2019
1.00pm – 4.00pm
As part of the Community Mental Health Re-design Project, a Community Mental Health Consumer and Carer workshop is being held for consumers and carers who are or have received care from CALHN mental health services.
The aim of the workshop is to identify:
Who are our consumers, carers and community?
What are our guiding principles?
Service description – what works well and what we could do better?
Future service – how would it work?
Find out more and Register here