As part of an inquiry into My Health Record, the Senate Community Affairs Committee (the Committee) has called for public submissions into My Health Record. HCA hosted a focus group on Thursday 30 August aimed at gaining consumer insight into My Health Record. We combined their input with the feedback we received from members of the Consumer Advocates Network (CAN) at the August CAN meeting to inform our submission. We would like to thank all consumers who participated. The My Health Record Consumer Consultation report is available below.
HCA hosted a focus group on Monday 30 July 2018 on behalf of the South Australian Ambulance Services (SAAS) on the Secondary Triage Service. The forum sought to gain consumer feedback on their experiences of this service, which was implemented during a peak demand period in 2017. Twenty-eight people attended the focus group (both consumers and carers) and provided varied feedback. HCA have provided a report to SAAS on the outcomes of the focus group which includes our recommendations about how to best manage this service in the future should it continue. You can read the full report below
HCA recently hosted two consumer forums in partnership with SA Health to address the following objectives relating to public reporting of health data:
1. key principles of public reporting of health data
2. what data consumers would like access to
3. how data should be made accessible to the public and how often.
Forty-three people attended and contributed their ideas. Participant feedback was overwhelmingly positive, indicating that the forums were well facilitated and that the forum objectives were met. Find a full copy of the reportrt below.
Health Consumers Alliance of SA Inc (HCA), in partnership with Adelaide Primary Health Network and SA Health, held Advance Care Directives: A matter of love, rights and self-determination, on Wednesday 18 April 2018, from 4.00 to 6.00pm. Approximately 110 people attended. Participant feedback was overwhelmingly positive, indicating that the objectives of the forum were met. Participants felt informed, empowered, and motivated to complete their own Advance Care Directives. The forum report is available below, and video recordings of the event will be available next week.
Health Consumers Alliance of SA Inc (HCA) held a consumer forum, Summary Framework for the State Public Health Plan 2019 - 2024, on Tuesday 29 May 2018. The objectives of the forum were to provide consumers the opportunity to:
1. learn more about the draft Plan and the role of public health
2. share their views about what a healthier South Australia looks like to them
3. help shape the development of the draft State Public Health Plan, which will set the direction for public health and wellbeing in South Australia over the next five years.
The event report can be found below.
The draft State Public Health Plan 2019 – 2024 is available for download here.
HCA hosted a forum on consumer experience of SA Health funded services on Wednesday 29 November 2017. The forum objective was for participants to establish an approach across SA Health that ensures community-based services funded through SA Health have a consumer-centred care focus. The report outlining the main themes to emerge from the forum is now available for download below.
Last Thursday HCA hosted researchers Dr Ray Moynihan and Professor Lisa Bero from Bond University and Sydney University for a consumer workshop. The workshop was one in a series of national workshops with consumers about the issue of financial conflicts of interests with a focus on relationships with drug companies. The workshop covered the financial relationships between research funders and clinicians or researchers and the impact on outcomes. The group also discussed why conflict of interests matter and how these conflicts can become risks to studies and how to be more transparent with this information. HCA was pleased to host such a dynamic and engaging workshop.
HCA will share the findings of this study when it becomes available.
HCA will close for the Christmas period, Monday 24 December 2018 and reopening on Monday 7 January 2019. Next week's eNews will be our last for 2018 and will be a short wrap up of the year.
The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.
There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.
SA Health has established the SA Health Pelvic Mesh Clinic at Royal Adelaide Hospital, a specialist clinic for women experiencing complications from pelvic mesh. The clinic aims to provide comprehensive multidisciplinary health care for all South Australian women experiencing major complications related to pelvic mesh implants. The clinic brings together experts from various health backgrounds and disciplines to work together as a team to review each patient’s individual case. A GP referral is required to access the clinic. Information for consumers and GPs is available here.
The Pelvic Mesh Consumer Support Line: 1800 66 MESH (1800 666 374) remains in operation for consumers requiring information about transvaginal mesh, operating between 9am and 4pm Monday to Friday (excluding public holidays).
The Australian Commission on Safety and Quality in Health Care released the Third Australian Atlas of Healthcare Variation. The goals of the Atlas series are to map variation in health care across Australia, promote investigation to identify any unwarranted variation and recommend actions to reduce unwarranted variation.
The Commission released the first Atlas in November 2015. This was followed by the release of the second Atlas covering different topics in June 2017. The third Atlas was launched by the Hon Greg Hunt MP on 11 December 2018.
You can view the report here.
Head to Health is an online portal that helps Australians find appropriate mental health resources. The website has compiled resources from national mental health services such as beyond blue and the black dog insitute as well as universities across Australia into one space to make it easier for Australians to find the right information. You can search for specific resources to suit you, for example if you search for bipolar, several fact sheets and websites specific to bipolar will show with information on how to access support. There is also information for loved ones and carers, with accessible information and steps on how to effectively support someone experiencing mental health challenges.
You can visit the site here.
24 - 27 March 2019
Everything you need to refresh your energy and passion for improving the health of people in rural and remote Australia is there; including:
Register here before 31 December 2018 to take advantage of the discounted Earlybird registration rate.