As part of an inquiry into My Health Record, the Senate Community Affairs Committee (the Committee) has called for public submissions into My Health Record. HCA hosted a focus group on Thursday 30 August aimed at gaining consumer insight into My Health Record. We combined their input with the feedback we received from members of the Consumer Advocates Network (CAN) at the August CAN meeting to inform our submission. We would like to thank all consumers who participated. The My Health Record Consumer Consultation report is available below.
HCA hosted a focus group on Monday 30 July 2018 on behalf of the South Australian Ambulance Services (SAAS) on the Secondary Triage Service. The forum sought to gain consumer feedback on their experiences of this service, which was implemented during a peak demand period in 2017. Twenty-eight people attended the focus group (both consumers and carers) and provided varied feedback. HCA have provided a report to SAAS on the outcomes of the focus group which includes our recommendations about how to best manage this service in the future should it continue. You can read the full report below
HCA recently hosted two consumer forums in partnership with SA Health to address the following objectives relating to public reporting of health data:
1. key principles of public reporting of health data
2. what data consumers would like access to
3. how data should be made accessible to the public and how often.
Forty-three people attended and contributed their ideas. Participant feedback was overwhelmingly positive, indicating that the forums were well facilitated and that the forum objectives were met. Find a full copy of the reportrt below.
Health Consumers Alliance of SA Inc (HCA), in partnership with Adelaide Primary Health Network and SA Health, held Advance Care Directives: A matter of love, rights and self-determination, on Wednesday 18 April 2018, from 4.00 to 6.00pm. Approximately 110 people attended. Participant feedback was overwhelmingly positive, indicating that the objectives of the forum were met. Participants felt informed, empowered, and motivated to complete their own Advance Care Directives. The forum report is available below, and video recordings of the event will be available next week.
Health Consumers Alliance of SA Inc (HCA) held a consumer forum, Summary Framework for the State Public Health Plan 2019 - 2024, on Tuesday 29 May 2018. The objectives of the forum were to provide consumers the opportunity to:
1. learn more about the draft Plan and the role of public health
2. share their views about what a healthier South Australia looks like to them
3. help shape the development of the draft State Public Health Plan, which will set the direction for public health and wellbeing in South Australia over the next five years.
The event report can be found below.
The draft State Public Health Plan 2019 – 2024 is available for download here.
HCA hosted a forum on consumer experience of SA Health funded services on Wednesday 29 November 2017. The forum objective was for participants to establish an approach across SA Health that ensures community-based services funded through SA Health have a consumer-centred care focus. The report outlining the main themes to emerge from the forum is now available for download below.
HCA are reviewing the way we use social media and how to make sure you get the most out of the information we share and so we can gather your feedback and opinions. We want to know what you want to see on our social media and what engages you the most. Social media is a great way to inform and engage with the community and we think we could be using it better! We would really appreciate your feedback.
Please complete our one minute survey here to help us improve our social media engagement.
The March HCASA Board meeting recently confirmed our capacity to continue our work well into 2020. HCASA is here to stay. We had expected to call a Special General Meeting at about this time to ask our members to consider the organisation’s future. After careful consideration of our financial position, our capacity and the importance of our work we are instead scheduling the launch of our new business prospectus. This is planned for Monday 17 June, Save the date.
You will have read in eNews that we have moved our offices upstairs from level 1 to 3 at 12 Pirie Street. Our team continues to do an amazing job building a viable and sustainable business future. You’ll hear more about this on/after 17 June. We would not have been able to consider such an optimistic future without the pragmatic and moral support of our members, partners and supporters. Thank you.
We encourage organisations and individuals who believe in our vision of ‘consumers at the centre of health’ to make sure they have current membership of HCASA. As you know, we are a state-wide, member-based incorporated association with no political affiliations. We provide the information, training and services people, services and policy makers need to ensure consumers have a powerful influence on the health services that they pay for, use and expect to support the health and wellbeing of all South Australians. This work must and will continue.
Debra Kay PSM
Board Chair HCASA
On behalf of the HCASA Board and Staff Team
There have been some changes at the Health and Community Service Complaints Commissioner (HCSCC). On 18 March 2019, South Australia implemented the Code of Conduct for Certain Health Care Workers which replaced the Code of Conduct for Unregistered Health Practitioners. This change aligns South Australia with the National Code of Conduct for Health Care Workers approved by the COAG Health Council. Unregistered health care workers who do not fall within the jurisdiction of the Australian Health Practitioner Regulation Agency (AHPRA) will have to comply with the code and display certain information where they practise.
The code establishes:
• A range of minimum standards for unregistered health care workers.
• Additional powers to the HCSCC if an unregistered health care worker is found to have breached the Code.
Law changes also came into effect that allow the Health and Community Services Complaints Commissioner to:
• Adopt prohibition orders imposed on individuals from across Australia.
• Investigate individual volunteers providing a health service.
• Restrict people who are subject to a prohibition order from advertising and promoting themselves as a health service.
• Issue a public statement to identify a person or warn the public when interim action has been taken.
You’ll also notice that the HCSCC has a new website, which the Health Consumer’s Alliance was consulted on. The new website is easier to navigate, provides clearer information and is consumer tested. Go check it out!
Cancer Voices SA - Raising a Voice for People Affected by Cancer Annual Report 2018.
In 2019 HCA will work with consumers, partner agencies and other stakeholders to develop more focused training modules for consumers on topics such as:
One of the changes of not having a core funding base is that we will now be charging for our training, including consumer training. Fees will be kept as low as possible, and opportunities for subsidised training will be made available to consumers who do not have the capacity to pay.
Back to eNews here
The Bleeding Edge Screening
When: Wednesday 1 May 2019 1.30pm to 4.30pm
Where: The Science Exchange, 55 Exchange Place, Adelaide
HCA are proud to host a screening of the award winning documentary, The Bleeding Edge.
The film looks at the $400 billion medical device industry and the profit-driven mind-set that rushes implanted devices into the marketplace without proper clinical trials. The screening will be followed by a panel and question and answer session. Afternoon tea will also be provided.
You can register for the event here.
Thursday 30 May 2019
The 2019 annual Choosing Wisely National Meeting will bring together policy makers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the Choosing Wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April.
Find out more and register here.
Wednesday 30 January 2019
10am – 12pm
HCA is hosting a focus group for the South Australian Health and Community Services Complaints Commissioner (HCSCC). The focus group aims to gain consumer feedback on their current website to ensure it is user-friendly.
You can find out more and register here.
Back to eNews here.
Thursday 30 May 2019
The annual 2019 Choosing Wisely National Meeting will bring together policymakers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the choosing wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April. You can find out more about the meeting and the Choosing Wisely initiative here.