In the South Australian health system, it is now more widely accepted that consumers should have a central role as the users and beneficiaries of health care and, ultimately are the ones who pay for it. While once the consumer voice was heard only at the margins of the health system, now HCA helps facilitate the appointment of consumer representatives on more than 20 health-related committees.
Advocacy can bring about change or it may maintain the status quo, but it is always directed towards a specific goal or end.
Closes: Friday 11 January 2018
Nominations are open for the National Health and Medical Research Centre (NHMRC) Consumer Engagement Award. Nominations are sought for individuals, groups of individuals or organisations who have been:
strong advocates for health and medical research and/or
inspirational role models for health consumers and/or
instrumental in improving or supporting community interactions with health and medical research.
The award recognises long-term contribution, individual commitment, and support of consumers and community views in health and medical research. You can find out more here.
Closes: Sunday 6 January 2018
The Royal Australasian College of Physician (RACP) is seeking a Consumer with Aboriginal and/or Torres Strait Islander background and/or experience to join their Consumer Advisory Group. The College established a Consumer Advisory Group to provide strategic advice on the integration of patient centred care in the College’s professional standards and education approaches and to support the integration of the consumer voice and priorities into policy and advocacy activities. The appointment is for a two-year term from 1 February 2019 to 1 February 2021. In 2019, the group will meet quarterly, via two face-to-face meetings in Sydney and two teleconferences. The expected meeting times will be 10am to 4pm. The expected teleconference duration will be 2 hours. Please note that travel costs and sitting fees will be covered for this work. You can find out more below.
COTA SA is seeking to train and support volunteer Aged Care Peer Champions as the My Aged Care Support Program expands. Peer Champions offer one-on-one support to seniors living independently to help them understand and navigate the My Aged Care systems. They also run small group sessions. We are seeking Peer Champions in the following areas:
Sonder is seeking mental health consumers and carers of someone with a mental health condition to join their Consumer and Carer Reference Group. The group will provide the voice of lived experience which will help to guide Sonder's development of mental health services.
NPS MedicineWise is seeking consumer input for the development of an online Medicinal Cannabis Information Hub for their website. This will provide evidence-based information to allow for informed conversations with health professionals about potential benefits, harms and side effects of medicinal cannabis. NPS MedicineWise is seeking consumers to review information and provide feedback either in writing or over the phone.
Last Thursday HCA hosted researchers Dr Ray Moynihan and Professor Lisa Bero from Bond University and Sydney University for a consumer workshop. The workshop was one in a series of national workshops with consumers about the issue of financial conflicts of interests with a focus on relationships with drug companies. The workshop covered the financial relationships between research funders and clinicians or researchers and the impact on outcomes. The group also discussed why conflict of interests matter and how these conflicts can become risks to studies and how to be more transparent with this information. HCA was pleased to host such a dynamic and engaging workshop.
HCA will share the findings of this study when it becomes available.
HCA will close for the Christmas period, Monday 24 December 2018 and reopening on Monday 7 January 2019. Next week's eNews will be our last for 2018 and will be a short wrap up of the year.
The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.
There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.
SA Health has established the SA Health Pelvic Mesh Clinic at Royal Adelaide Hospital, a specialist clinic for women experiencing complications from pelvic mesh. The clinic aims to provide comprehensive multidisciplinary health care for all South Australian women experiencing major complications related to pelvic mesh implants. The clinic brings together experts from various health backgrounds and disciplines to work together as a team to review each patient’s individual case. A GP referral is required to access the clinic. Information for consumers and GPs is available here.
The Pelvic Mesh Consumer Support Line: 1800 66 MESH (1800 666 374) remains in operation for consumers requiring information about transvaginal mesh, operating between 9am and 4pm Monday to Friday (excluding public holidays).
The Australian Commission on Safety and Quality in Health Care released the Third Australian Atlas of Healthcare Variation. The goals of the Atlas series are to map variation in health care across Australia, promote investigation to identify any unwarranted variation and recommend actions to reduce unwarranted variation.
The Commission released the first Atlas in November 2015. This was followed by the release of the second Atlas covering different topics in June 2017. The third Atlas was launched by the Hon Greg Hunt MP on 11 December 2018.
You can view the report here.
Head to Health is an online portal that helps Australians find appropriate mental health resources. The website has compiled resources from national mental health services such as beyond blue and the black dog insitute as well as universities across Australia into one space to make it easier for Australians to find the right information. You can search for specific resources to suit you, for example if you search for bipolar, several fact sheets and websites specific to bipolar will show with information on how to access support. There is also information for loved ones and carers, with accessible information and steps on how to effectively support someone experiencing mental health challenges.
You can visit the site here.
24 - 27 March 2019
Everything you need to refresh your energy and passion for improving the health of people in rural and remote Australia is there; including:
Register here before 31 December 2018 to take advantage of the discounted Earlybird registration rate.