My Health Record is an online summary of your health information. You control what information is stored, and who can access it. Health information stored in your record can include information from you, your healthcare providers, and Medicare.
Your My Health Record allows you to share your health information with doctors, hospitals and other healthcare providers from anywhere, at any time. It stores information on allergies, medical conditions and treatments, medicine details, and test or scan results in one place.
Healthcare providers such as doctors, specialists and hospital staff may also be able to access your My Health Record online at any time if they need to, such as in an accident or emergency. This can help you get the right treatment.
By the end of 2018, a My Health Record will be created for every Australian, unless they choose not to have one and opt out. You can find out more about My Health Record here.
On Thursday 15 November 2018 the Senate passed the My Health Records Amendment (Strengthening Privacy) Bill 2018. The Bill will need to go back to the House of Representatives, which sits again on Monday 26 November 2018. If passed by the House of Representatives in its current form, it will then be assented and become law. Following the Senate vote to extend the opt-out period, the Minister for Health has announced that the opt-out period will be extended until 31 January 2019. The amendments that passed the Senate yesterday are another step in ensuring the system has the confidence of the Australian public, promotes greater health outcomes and protects the privacy and security of people’s health information.
There are a number of amendments in the Bill that strengthen the My Health Records privacy and security protections. A summary of the changes is available here
The Australian Digital Health Agency was established in 2016 by the governments of Australia to lead the development of the National Digital Health Strategy (the Strategy) and its implementation. The Strategy is the product of detailed consultation and co-production with patients, consumers and carers – and the healthcare professionals, industry,organisations and innovators who serve them. It draws on evidence of clinical and economic benefit from many sources within Australia and overseas. You can find out more here.
Monday the 16 July was the first day for consumers to opt out for My Health Record. This year you will get a My Health Record unless you opt out during the three-month period from 16 July to 15 November 2018. My Health Record is an online summary of your key health information. When you have a My Health Record, your health information can be viewed securely online, from anywhere, at any time – even if you move or travel interstate. You can access your health information from any computer or device that’s connected to the internet. You can find out more about My Health Record and the details for opting out here.
Donna Sedgman from the Australian Digital Health Agency will be joining the Health Consumers NSW for a Facebook Live session on Thursday 19 July at 2:30pm. The session will look at the benefits and risks of My Health Record. You can find out more details about the event here.
Consumers Health Forum of Australia have published a blog on the pros and cons of My Health Record. You can access the summary here.
With the launch of the National Digital Health Strategy in July, Australian Digital Health Agency CEO Tim Kelsey addressed the National Press Club about how digital information can transform the quality and sustainability of health and care. You can watch the catch up interview on ABC iview here.
Last Thursday HCA hosted researchers Dr Ray Moynihan and Professor Lisa Bero from Bond University and Sydney University for a consumer workshop. The workshop was one in a series of national workshops with consumers about the issue of financial conflicts of interests with a focus on relationships with drug companies. The workshop covered the financial relationships between research funders and clinicians or researchers and the impact on outcomes. The group also discussed why conflict of interests matter and how these conflicts can become risks to studies and how to be more transparent with this information. HCA was pleased to host such a dynamic and engaging workshop.
HCA will share the findings of this study when it becomes available.
HCA will close for the Christmas period, Monday 24 December 2018 and reopening on Monday 7 January 2019. Next week's eNews will be our last for 2018 and will be a short wrap up of the year.
The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.
There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.
SA Health has established the SA Health Pelvic Mesh Clinic at Royal Adelaide Hospital, a specialist clinic for women experiencing complications from pelvic mesh. The clinic aims to provide comprehensive multidisciplinary health care for all South Australian women experiencing major complications related to pelvic mesh implants. The clinic brings together experts from various health backgrounds and disciplines to work together as a team to review each patient’s individual case. A GP referral is required to access the clinic. Information for consumers and GPs is available here.
The Pelvic Mesh Consumer Support Line: 1800 66 MESH (1800 666 374) remains in operation for consumers requiring information about transvaginal mesh, operating between 9am and 4pm Monday to Friday (excluding public holidays).
The Australian Commission on Safety and Quality in Health Care released the Third Australian Atlas of Healthcare Variation. The goals of the Atlas series are to map variation in health care across Australia, promote investigation to identify any unwarranted variation and recommend actions to reduce unwarranted variation.
The Commission released the first Atlas in November 2015. This was followed by the release of the second Atlas covering different topics in June 2017. The third Atlas was launched by the Hon Greg Hunt MP on 11 December 2018.
You can view the report here.
Head to Health is an online portal that helps Australians find appropriate mental health resources. The website has compiled resources from national mental health services such as beyond blue and the black dog insitute as well as universities across Australia into one space to make it easier for Australians to find the right information. You can search for specific resources to suit you, for example if you search for bipolar, several fact sheets and websites specific to bipolar will show with information on how to access support. There is also information for loved ones and carers, with accessible information and steps on how to effectively support someone experiencing mental health challenges.
You can visit the site here.
24 - 27 March 2019
Everything you need to refresh your energy and passion for improving the health of people in rural and remote Australia is there; including:
Register here before 31 December 2018 to take advantage of the discounted Earlybird registration rate.