My Health Record is an online summary of your health information. You control what information is stored, and who can access it. Health information stored in your record can include information from you, your healthcare providers, and Medicare.
Your My Health Record allows you to share your health information with doctors, hospitals and other healthcare providers from anywhere, at any time. It stores information on allergies, medical conditions and treatments, medicine details, and test or scan results in one place.
Healthcare providers such as doctors, specialists and hospital staff may also be able to access your My Health Record online at any time if they need to, such as in an accident or emergency. This can help you get the right treatment.
By the end of 2018, a My Health Record will be created for every Australian, unless they choose not to have one and opt out. You can find out more about My Health Record here.
On Thursday 15 November 2018 the Senate passed the My Health Records Amendment (Strengthening Privacy) Bill 2018. The Bill will need to go back to the House of Representatives, which sits again on Monday 26 November 2018. If passed by the House of Representatives in its current form, it will then be assented and become law. Following the Senate vote to extend the opt-out period, the Minister for Health has announced that the opt-out period will be extended until 31 January 2019. The amendments that passed the Senate yesterday are another step in ensuring the system has the confidence of the Australian public, promotes greater health outcomes and protects the privacy and security of people’s health information.
There are a number of amendments in the Bill that strengthen the My Health Records privacy and security protections. A summary of the changes is available here
The Australian Digital Health Agency was established in 2016 by the governments of Australia to lead the development of the National Digital Health Strategy (the Strategy) and its implementation. The Strategy is the product of detailed consultation and co-production with patients, consumers and carers – and the healthcare professionals, industry,organisations and innovators who serve them. It draws on evidence of clinical and economic benefit from many sources within Australia and overseas. You can find out more here.
Monday the 16 July was the first day for consumers to opt out for My Health Record. This year you will get a My Health Record unless you opt out during the three-month period from 16 July to 15 November 2018. My Health Record is an online summary of your key health information. When you have a My Health Record, your health information can be viewed securely online, from anywhere, at any time – even if you move or travel interstate. You can access your health information from any computer or device that’s connected to the internet. You can find out more about My Health Record and the details for opting out here.
Donna Sedgman from the Australian Digital Health Agency will be joining the Health Consumers NSW for a Facebook Live session on Thursday 19 July at 2:30pm. The session will look at the benefits and risks of My Health Record. You can find out more details about the event here.
Consumers Health Forum of Australia have published a blog on the pros and cons of My Health Record. You can access the summary here.
With the launch of the National Digital Health Strategy in July, Australian Digital Health Agency CEO Tim Kelsey addressed the National Press Club about how digital information can transform the quality and sustainability of health and care. You can watch the catch up interview on ABC iview here.
HCA are reviewing the way we use social media and how to make sure you get the most out of the information we share and so we can gather your feedback and opinions. We want to know what you want to see on our social media and what engages you the most. Social media is a great way to inform and engage with the community and we think we could be using it better! We would really appreciate your feedback.
Please complete our one minute survey here to help us improve our social media engagement.
The March HCASA Board meeting recently confirmed our capacity to continue our work well into 2020. HCASA is here to stay. We had expected to call a Special General Meeting at about this time to ask our members to consider the organisation’s future. After careful consideration of our financial position, our capacity and the importance of our work we are instead scheduling the launch of our new business prospectus. This is planned for Monday 17 June, Save the date.
You will have read in eNews that we have moved our offices upstairs from level 1 to 3 at 12 Pirie Street. Our team continues to do an amazing job building a viable and sustainable business future. You’ll hear more about this on/after 17 June. We would not have been able to consider such an optimistic future without the pragmatic and moral support of our members, partners and supporters. Thank you.
We encourage organisations and individuals who believe in our vision of ‘consumers at the centre of health’ to make sure they have current membership of HCASA. As you know, we are a state-wide, member-based incorporated association with no political affiliations. We provide the information, training and services people, services and policy makers need to ensure consumers have a powerful influence on the health services that they pay for, use and expect to support the health and wellbeing of all South Australians. This work must and will continue.
Debra Kay PSM
Board Chair HCASA
On behalf of the HCASA Board and Staff Team
There have been some changes at the Health and Community Service Complaints Commissioner (HCSCC). On 18 March 2019, South Australia implemented the Code of Conduct for Certain Health Care Workers which replaced the Code of Conduct for Unregistered Health Practitioners. This change aligns South Australia with the National Code of Conduct for Health Care Workers approved by the COAG Health Council. Unregistered health care workers who do not fall within the jurisdiction of the Australian Health Practitioner Regulation Agency (AHPRA) will have to comply with the code and display certain information where they practise.
The code establishes:
• A range of minimum standards for unregistered health care workers.
• Additional powers to the HCSCC if an unregistered health care worker is found to have breached the Code.
Law changes also came into effect that allow the Health and Community Services Complaints Commissioner to:
• Adopt prohibition orders imposed on individuals from across Australia.
• Investigate individual volunteers providing a health service.
• Restrict people who are subject to a prohibition order from advertising and promoting themselves as a health service.
• Issue a public statement to identify a person or warn the public when interim action has been taken.
You’ll also notice that the HCSCC has a new website, which the Health Consumer’s Alliance was consulted on. The new website is easier to navigate, provides clearer information and is consumer tested. Go check it out!
Cancer Voices SA - Raising a Voice for People Affected by Cancer Annual Report 2018.
In 2019 HCA will work with consumers, partner agencies and other stakeholders to develop more focused training modules for consumers on topics such as:
One of the changes of not having a core funding base is that we will now be charging for our training, including consumer training. Fees will be kept as low as possible, and opportunities for subsidised training will be made available to consumers who do not have the capacity to pay.
Back to eNews here
The Bleeding Edge Screening
When: Wednesday 1 May 2019 1.30pm to 4.30pm
Where: The Science Exchange, 55 Exchange Place, Adelaide
HCA are proud to host a screening of the award winning documentary, The Bleeding Edge.
The film looks at the $400 billion medical device industry and the profit-driven mind-set that rushes implanted devices into the marketplace without proper clinical trials. The screening will be followed by a panel and question and answer session. Afternoon tea will also be provided.
You can register for the event here.
Thursday 30 May 2019
The 2019 annual Choosing Wisely National Meeting will bring together policy makers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the Choosing Wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April.
Find out more and register here.
Wednesday 30 January 2019
10am – 12pm
HCA is hosting a focus group for the South Australian Health and Community Services Complaints Commissioner (HCSCC). The focus group aims to gain consumer feedback on their current website to ensure it is user-friendly.
You can find out more and register here.
Back to eNews here.
Thursday 30 May 2019
The annual 2019 Choosing Wisely National Meeting will bring together policymakers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the choosing wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April. You can find out more about the meeting and the Choosing Wisely initiative here.