NPS MedicineWise and Dementia Australia have prepared downloadable materials to help you ask questions and talk with people close to you and the health professionals involved in your care about how you would like to be supported. The main resource is an information booklet, designed to help you:
You can find out more here.
Over the past week, HCA has continued discussions with Politicians and other key stakeholders emphasising the importance of ensuring consumers remain at the centre of health care in South Australia.
The defunding of HCA was tabled during last week's question time in the House of Representatives. You can view the transcript in relation to the de-funding of HCA below.
Many of you have responded to the question we posed in last weeks eNews..."What does HCA mean to you"? We have published some of your answers below:
''HCA supports consumers across a wide range of health issues and institutions''.
''HCA keeps me up to date with training opportunities, opportunities to participate in community consultations including health-related, YourSAy surveys, and a place to turn to for professional advice about my roles as a health consumer representative''.
''Without HCA I would not have the knowledge, skills, support, and access to opportunities that enable me to volunteer as an effective health consumer representative''.
If you have not yet shared your experience of HCA with us, we would love to hear from you. You can submit your thoughts here
What have we been doing?
Over the last week HCA has met with both the Minister and Shadow Minister for Health and Wellbeing. We had the opportunity to ask the Minister about his decision and will publish the meeting notes once they are endorsed by the Minister.
We also attended the SACOSS Post Budget Breakfast with the Treasurer and had the opportunity to ask a question in relation to the decision to cease support of HCA from 1 July 2019.
HCA remains committed to working with SA Health to ensure that the consumer voice is heard at all levels across the health system.
What have you been doing?
Last week we encouraged you to approach your local member of parliament, the Minister, Premier and Treasurer with questions.
Some other questions you may want to ask could be: -
Given that the government has announced consumer and community engagement is now to occur through the new local governing boards, have the local LHNs received any additional funding for this purpose?
Your help in advocating for your independent peak consumer organisation is important in retaining the independent voice of South Australian Health Consumers.
We are compiling evidence about how having an independent consumer peak is important. Tell us how having HCA is important to you? Submit your quote here.
The board was pleased to welcome our new sector representative, Danny Broderick to his first board meeting last night. Danny has worked in a diverse range of positions over four decades in youthwork, disability services community health and primary health services and public health. He has occupied senior and executive leadership positions and has led several organisational change strategies. He has worked in non-government organisations as well as in state and local government. He has led advocacy for progressive health policy and health reform including taking leadership roles in the development of health legislation in this state. He holds qualifications in social work and health economics.
Watch this space for the call next week for nominations for election of directors at our Annual General Meeting on 19 November 2018.
Thank you for the overwhelming messages of support received from individuals and organisations across the state and nationally. We need your help to retain the independent voice of South Australian health consumers.
The HCA Board met last night. We have now received written confirmation of the announcement we first heard in the Budget lockup last Tuesday. You can view the letter below.
The letter says consumer and community engagement is now to occur through the new local governing boards, who ‘might choose to partner with HCA’. The boards are established 1 July 2019. The Minister’s funding ceases 30 June 2019.
We have asked to meet with the Minister. We have questions for him. HCA wants to know:
1. Why has the Minister decided to stop funding the independent voice of South Australian consumers?
2. When government support for independent consumer voice is growing around the country, why is the Minister removing funding for South Australian consumers?
3. Who will gather and report on state-wide perspectives on SA Health issues? And make sure the people who are often not heard, are heard?
4. Who will support state-wide patient organisations when there are persistent and damaging errors that are not being fixed within local health networks?
We will let you know in next week’s enews what answers we get.
You might want to ask your local member of parliament, the Minister, Premier and Treasurer some questions too.
We encourage you to contact your local member. Current details of each electorates member of parliament are available below. If you are unsure of your electorate you can find out the name of your electorate based on your suburb below.
The Registry of Older South Australians (ROSA) is the product of the Health Ageing Research Consortium, which is a cross sectoral partnership of researchers, consumers, aged care providers and consumer advocacy groups. HCA is a consortium partner and co-chair of the consumer engagement group. ROSA is a unique data resource that will support evidence-driven decision-making to improve the lives of all South Australians accessing aged care service. ROSA was designed to monitor the health, service utilisation, medication use, mortality and other outcomes of people receiving aged care services in South Australia. You can view the first ROSA report below.
HCA, in partnership with Adelaide Primary Health Network and SA Health, held Advance Care Directives: A matter of love, rights and self-determination, on Wednesday 18 April 2018. The forum was recorded and is available to view