HCA’s Chief Executive, Julia Overton was invited to attend a morning tea held in SA Parliament House and hosted by the Pelvic Mesh Awareness Group. The morning brought people with lived experience together with members of parliament, industry experts and SA health. Thank you to the mesh affected women who attended and shared their experiences with us.
There is a SA Health Transvaginal Mesh Strategy in place now which includes:
- a free consumer support line 1800 666 374, staffed 9am to 4pm Monday to Friday
- establishment of The Consumer Advisory Group
- distribution of information via GP newsletters
- commencement of medical record audit
- establishment of The Executive Advisory Group and Clinical Reference Group.
You can find out more here
Pelvic mesh has been used in the treatment of pelvic organ prolapse and stress urinary incontinence since the ‘90s and the majority of women who have had surgical treatment continue to have a good long-term outcome; however, some women have experienced complications. As a result the State Government has established a contact line for women concerned about the safety of pelvic mesh. SA Health has established a governance framework to support affected women & clinical referral pathways are being developed. Consumers can be directed to the Pelvic Mesh Consumer Support Line 9 - 4 Mon-Fri via 1800 66 MESH (1800 666 374). You can find out more here.
The Australian Commission on Safety and Quality in Health Care hasfinalised a number of resources and guidance documents to improve health care for women considering the use of transvaginal mesh for pelvic organ prolapse (POP) and stress urinary incontinence (SUI), and for removal of transvaginal mesh. Find out more here.
Tuesday 26 June 2018
A letter has been submitted to the Australian Commission on Safety and Quality in Health Care by each state’s Pelvic Mesh Support Groups and the Health Consumer organisations in each State and Territory across Australia, asking the Commission to comprehensively address the recommendations tabled in the Senate Report. You can download a copy of the letter below.
The Australian Commission on Safety and Quality in Health Care have released two consumer resources to assist and support to women who are considering treatment options in regard to Pelvic Organ Prolapse and Stress Urinary Incontinence. The resources were developed in consultation with many women across the country, who shared their lived experience at various meetings around the country. You can view both of the resources below.
The Australian Government is making changes to Medicare-funded urogynaecological services relating to pelvic organ prolapse repair, based on advice from the Medicare Benefits Schedule (MBS) Review Taskforce. You can view the factsheet below.
The Royal Australian College of General Practitioners (RACGP) has released a statement for General Practitioners outlining the impact of the senate enquiry on future treatment options. It outlines recommendations on how to treat women who have had mesh inserted and are exhibiting adverse symptoms, and information about treatment of women who experience pelvic organ prolapse and stress urinary incontinence. You can read the article here.
Over the past week, HCA has continued discussions with Politicians and other key stakeholders emphasising the importance of ensuring consumers remain at the centre of health care in South Australia.
The defunding of HCA was tabled during last week's question time in the House of Representatives. You can view the transcript in relation to the de-funding of HCA below.
Many of you have responded to the question we posed in last weeks eNews..."What does HCA mean to you"? We have published some of your answers below:
''HCA supports consumers across a wide range of health issues and institutions''.
''HCA keeps me up to date with training opportunities, opportunities to participate in community consultations including health-related, YourSAy surveys, and a place to turn to for professional advice about my roles as a health consumer representative''.
''Without HCA I would not have the knowledge, skills, support, and access to opportunities that enable me to volunteer as an effective health consumer representative''.
If you have not yet shared your experience of HCA with us, we would love to hear from you. You can submit your thoughts here
The Aboriginal Health Council of South Australia Limited (AHCSA) holds grave concerns as to the decisions made in the 2018-2019 South Australian Budget, and their probable impact upon the health and welfare of South Australia’s Aboriginal Community. They have released a media statement outlining their main concerns. You can read their full statement in response to the 2018-2019 South Australian Budget below.
On 15 August 2018, the Senate referred My Health Record to the Senate Community Affairs References Committee for inquiry and report. Health Consumers Alliance (HCA) sought feedback from consumers via the Consumer Advocates Network (CAN) meeting held in August and a focus group held on 30 August. Both of these engagement opportunities were used to inform HCA’s submission to the enquiry.
The feedback at both engagement sessions about MHR was consistent. The key messages in the consumer feedback includes:
• My Health Record is a good initiative that should result in improved service coordination and efficiency.
• Security, transparency and full disclosure of any breaches are paramount.
• An online tutorial is required to show people how to navigate and manage their record.
• Consideration needs to be given to the needs of vulnerable community members.
• People may need prompts during major life transitions to check and ensure that MHR meets their changing needs.
You can view the submission below.
Closes: Monday 22 October 2018
HCA’s 2018 Annual General Meeting (AGM) will be held on Monday 19 November 2018,
from 4-6pm at the HCA office, Level 1, 12 Pirie Street, Adelaide. Six director vacancies exist: four ordinary directors and the positions of chair and deputy chair.
Nominations for the Board are sought in accordance with the HCA Constitution, a copy of which is available on our website here.
What have we been doing?
Over the last week HCA has met with both the Minister and Shadow Minister for Health and Wellbeing. We had the opportunity to ask the Minister about his decision and will publish the meeting notes once they are endorsed by the Minister.
We also attended the SACOSS Post Budget Breakfast with the Treasurer and had the opportunity to ask a question in relation to the decision to cease support of HCA from 1 July 2019.
HCA remains committed to working with SA Health to ensure that the consumer voice is heard at all levels across the health system.
What have you been doing?
Last week we encouraged you to approach your local member of parliament, the Minister, Premier and Treasurer with questions.
Some other questions you may want to ask could be: -
Given that the government has announced consumer and community engagement is now to occur through the new local governing boards, have the local LHNs received any additional funding for this purpose?
Your help in advocating for your independent peak consumer organisation is important in retaining the independent voice of South Australian Health Consumers.
We are compiling evidence about how having an independent consumer peak is important. Tell us how having HCA is important to you? Submit your quote here.
Friday 12 October 2018
5.30pm – 7.00om
Arthritis SA is hosting a free public lecture as part of World Arthritis Day 2018, Professor Catherine Hill (Rheumatologist and Epidemiologist), Professor David Findlay (Cell and Molecular Biologist) and Ms. Colette Smith (President Arthritis SA) will present the latest information on the diagnosis and treatment of the most common forms of arthritis, bone and joint research, and present and future directions for arthritis treatment. You will also hear the journeys of people with lived experience of Arthritis. You can find out more and register here.
Thursday 4 October 2018
9.30am - 3.30pm
HCA has developed an Engagement and Advocacy for Influence Training for experienced consumer representatives who are looking to improve their skills, effectiveness and leadership. The session will cover:
This course will require some pre-reading. The training method will include presentations, group discussions and self-reflection activities.
You can view the program below.
Register to attend here.
Sonder is hosting two full-day Youth Mental Health Forum’s, one will be held in Southern Adelaide and one in Northern Adelaide. Topics covered throughout the day are centered around the issues affecting youth, including mental health, eating disorders, employment, suicide and trauma. You can find out more by clicking the links below.
For further information call Sonder on 8209 0700
Tuesday 6 – Friday 9 November 2018
The Aboriginal Drug & Alcohol Council (SA) Aboriginal Corporation is hosting the 5th National Indigenous Drug and Alcohol Conference over three days at the Adelaide Convention Centre. The theme of this Conference, ‘Responding to Complexity’, acknowledges the range of issues confronting indigenous populations that accompany harmful alcohol and other drug use. The Conference seeks to explore these complexities and the interventions and supports required to address harmful alcohol and drug use. You can find out more here.
Thursday 27 September 2018
10am – 4pm
The annual Disability, Ageing and Lifestyle Expo will showcase practical ideas, research and initiatives under the ‘My Life, My Choice’ theme. My Life, My Choice, is about empowering individuals, couples and families to ensure that they remain at the centre of decisions related to their needs and provide information about the types of services and supports that are available to them. You can find out more here.