Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

A story on ABC's Lateline at 9:30pm on Monday 14 August 2017 reveals that documents obtained by the ABC show the extent to which Johnson and Johnson oversold its surgical mesh products, which are used to treat incontinence and prolapse after childbirth. Find out more here.

The Australian Commission on Safety and Quality in Healthcare would like information about your experience of requesting your medical records. This survey aims to gather information about the relevant hospitals or state health departments where you have encountered problems getting your records and/or you have been charged a fee.

The information will then be collated and provided to the Commission so they can follow up with the health services. Their request to the health service to waive fees is is not guaranteed to have an outcome, but this seems worth pursuing.

If you have been charged a fee and want to see if it can be refunded, leave your details at the bottom of this short survey for follow up.

You may want to look at the web page on the issue. You can visit the webpage here. The survey is available here

HCA and our fellow health consumer organisations from across Australia launched a national campaign to understand the impact of pelvic mesh, tape or sling implants, which concluded Wednesday 31 May 2017. The Joint submission by Health Consumers Councils across Australia to the Senate Inquiry into the number of women in Australia who have had transvaginal mesh implants and related matters is now available below. All submissions made are available to view here.

 Joint submission by Health Consumers Councils across Australia 

HCA and our fellow health consumer organisations from across Australia have launched a national campaign to understand the impact of pelvic mesh, tape or sling implants.

What is pelvic mesh, tape or sling implants?

Pelvic mesh is used as an implant to resolve pelvic organ prolapse and stress urinary incontinence in women. The product design and implantation techniques appear to be responsible for serious, life-altering complications in some women. It is estimated that there may be as many as 100,000 women with the implant. And of these, the proportion of women suffering complications has been variously estimated to be anywhere between 1% and 30%.

The Health Issues Centre (HIC) have created a temporary Facebook page as a way to understand the magnitude of the problem and to gain insight into the quality of information that has been provided to women about this procedure. You can visit the page here.  

Survey

A survey has been created for women to provide information anonymously about their experiences with mesh, you are invited to complete the confidential survey here. 

Information sheet

An information sheet has been created to help women get the answers and support they need.
You can view the information sheet below.

Senate Inquiry

On 15 February 2017, a senate inquiry was launched into the number of women in Australia with pelvic mesh implants and related matters.
View the senate inquiry here.

Guide

A guide has been developed to assist women or members of their family to make a submission.
You can view the guide here 

Results so far…

The HIC has received a large number of responses. You can visit their website page here for more information. 

Donations

To continue to raise awareness the HIC is seeking donations throughout May 2017 to continue the campaign. You can find out more and donate here

Submissions

Submissions close Wednesday 31 May 2017

Report and Recommendations

To be released in November 2017.

 

The Australian Commission on Safety and Quality in Healthcare, following a request from state and territory health department representatives, is developing guidance for consumers, clinicians and health services on the use of transvaginal mesh products for the treatment of pelvic organ prolapse and stress urinary incontinence.

As part of this project, the Commission is reviewing the existing evidence on the use of transvaginal mesh and is working with a reference group that includes a range of clinical experts, consumer representatives and the Therapeutic Goods Administration. You can find out more by visiting their website here.

 

 

 

Radio National

You can listen to ABC’s radio national recent broadcast over the concerns of the side effects of pelvic mesh implants here

The Project

You can watch channel 10’s the project’s story on transvaginal mesh implants and view further links and statements here.

 Media Releases

Position Statement from Ranzcog

 

Latest news

Your views will help shape HCA’s advocacy and election priorities

At Health Consumers Alliance of SA Inc (HCA), we work with our members and supporters to achieve our vision: Consumers at the centre of health in South Australia.

In the lead-up to the state election, we are seeking consumer and community views to help shape our advocacy and election priorities.

We invite you to tell us what matters to you. As a guide, we have listed some questions below that you may wish to consider.

Please can you provide your views by Wednesday 1 November 2017, via email to This email address is being protected from spambots. You need JavaScript enabled to view it. or post to HCA, PO Box 2248, Adelaide, SA, 5001.

Questions:
1. What should health services do more of for South Australians?

2. What should health services stop doing for South Australians?

3. Are there issues that HCA should influence more?

4. Are there priority groups of South Australians that HCA could be helping more?

Thank you for sharing your views, and for helping us to promote and strengthen the voices, wellbeing, rights and leadership of health consumers.

Asthma SA resources

 Asthma SA has recently launched a range of asthma-related resources for community members from Arabic, Vietnamese, Mandarin, Dinka & Nepali speaking backgrounds.The resources reflect the different information needs of these community language groups with varying levels of health literacy in relation to asthma basic facts, key daily asthma management, & asthma first aid. You can access the resources here

 

Medical Record and Date-Driven Healthcare

The Australian Commission on Safety and Quality in Healthcare and Independent Hospital Pricing Authority have developed an animation about medical records and date-driven Healthcare. The animation was created in consultation with clinical stakeholders and aims to raise awareness among clinicians of what clinical coding is, and how the medical record is used in this context. You can watch the video

 

Forum report on the draft Consent to Medical Treatment and Palliative Care Amendment Bill

HCA hosted a forum on the draft Consent to Medical Treatment and Palliative Care Amendment Bill on Thursday 21 September 2017. The objective of the forum was to gain consumer feedback on the draft bill. The report outlining the main themes and recommendations emerging from the forum is available below. 

Consent Forum Report

2017 HCA Members Forum Summary Report

HCA held the 2017 HCA Members Forum on Monday 25 September 2017, from 3.00 to 5.00pm. Seventeen members attended. The purpose of the forum was to provide an opportunity for HCA members to identify the priorities for HCA’s advocacy and 2017/18 state election platforms.

Eight priority issues emerged:
1. The consumer/health system interface
2. Rural and remote health
3. Service improvement through the consumer voice
4. Aged care and older people, and health care homes
5. Social determinants of health - the needs and health care of Aboriginal and Torres Strait Islander children, and high incarceration rates, were highlighted at the conclusion of the forum. So too was the need to change the culture of the workplace to ensure a consumer focus. There was also an acknowledgement of racism in health care.
6. Consumer and carer escalation of care
7. Medication management first response and polypharmacy
8. Access and navigation of the health system, including E-Health and information technology access.

You can find the Forum Summary Report below.

2017 HCA Members Forum Summary Report


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Events

Ageing Well Conference

Wednesday 22 – Thursday 23 November 2017

The Ageing Well Conference will highlight the leading transformational global trends and bring together international experts to explore the business innovation and social innovation opportunities. At the heart of the design and thinking is ensuring people in their 60’s and beyond have better choices that bring their life greater purpose and meaning, and more control in determining the choices available to them as they transition through life’s course. You can find out more and register here. 

Consumer forum on the SA Health Community Power Dependency Project

Wednesday 15 November
1.00 - 3.30pm

Following the state-wide power outage in September 2016, SA Health has developed an emergency plan to manage the impacts of an extended power outage. HCA is hosting a forum to seek consumer advice on the SA Health Community Power Dependency Project. The forum objectives are to give consumers the opportunity to review the proposed Power Dependency Strategy and messaging, and provide feedback on what to do to prepare for and manage an outage. You can find out more and register here. 

National Carers Week 2017

Sunday 15 October – Saturday 21 October 2017

This week is National Carers Week, a time to recognise and celebrate the outstanding contribution that Australia’s 2.7 million unpaid carers make to our nation. There are many ways to engage with the campaign this year, you can find out more on the website here. You can publicly pledge your thanks to Australia’s unpaid carers and let them know how much they count here.

Adelaide Mitcham Prostate support meeting

Thursday 26 October 2017

7pm - 8.45pm

The Adelaide Mitcham Prostate support meeting will provide an overview of prostate disease. The guest speaker is Dr Richard Wells, who is a urologist. You can view the event flyer to find out more here. 

Cancer Voices Challenge Bike Ride

Sunday 22 October 2017

Cancer Voices Challenge Bike Ride is on this Sunday, starting at 8am from Kensington Gardens reserve, Norwood Parade between Glynburn & Penfolds Rd. Ride into the beautiful Adelaide Hills with 20, 35 or 67km distance options. Cost of entry-wear yellow! You can find out more and register here. 


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