Tuesday 26 June 2018
A letter has been submitted to the Australian Commission on Safety and Quality in Health Care by each state’s Pelvic Mesh Support Groups and the Health Consumer organisations in each State and Territory across Australia, asking the Commission to comprehensively address the recommendations tabled in the Senate Report. You can download a copy of the letter below.
The Australian Commission on Safety and Quality in Health Care have released two consumer resources to assist and support to women who are considering treatment options in regard to Pelvic Organ Prolapse and Stress Urinary Incontinence. The resources were developed in consultation with many women across the country, who shared their lived experience at various meetings around the country. You can view both of the resources below.
The Australian Government is making changes to Medicare-funded urogynaecological services relating to pelvic organ prolapse repair, based on advice from the Medicare Benefits Schedule (MBS) Review Taskforce. You can view the factsheet below.
The Royal Australian College of General Practitioners (RACGP) has released a statement for General Practitioners outlining the impact of the senate enquiry on future treatment options. It outlines recommendations on how to treat women who have had mesh inserted and are exhibiting adverse symptoms, and information about treatment of women who experience pelvic organ prolapse and stress urinary incontinence. You can read the article here.
The Senate Report on The number of women in Australia who have had transvaginal mesh implants and related matters was released on 28 March 2018, and can be found here.
Australia’s state and territory based health consumer organisations have welcomed the recognition of the extent and impact of harm to women, and the recommendations contained in the Senate report. But they say they hoped the report had gone further. You can view their press release below.
A joint media release by Pelvic Mesh Support Groups across Australia is also available below.
Consumers Health Forum of Australia has also issued the media release below, in response to the Senate Report.
HCA is working with consumers, specialists and SA Health to develop a model of care for South Australian women, to support women who have been injured through the use of vaginal mesh.
You can find further information on the Australian Commission for Safety and Quality in Health Care website here.
On 28 November 2017, the Therapeutic Goods Administration (TGA) advised of the decision to remove transvaginal mesh products which have the sole use as the treatment of pelvic organ prolapse (POP) via transvaginal implantation from the Australian Register of Therapeutic Goods (ARTG).
The TGA website provides detail of this decision here.
HCA are reviewing the way we use social media and how to make sure you get the most out of the information we share and so we can gather your feedback and opinions. We want to know what you want to see on our social media and what engages you the most. Social media is a great way to inform and engage with the community and we think we could be using it better! We would really appreciate your feedback.
Please complete our one minute survey here to help us improve our social media engagement.
Cancer Voices SA - Raising a Voice for People Affected by Cancer Annual Report 2018.
The Board has held its first meeting for 2019 (4 February). Directors and staff have been working out of session since our last meeting (17 December 2018) to progress interim and longer-term business plans. Our plans have changed because our government funding for systemic advocacy ends 30 June 2019. Our planning focus is on both the financial sustainability of the organisation and on maintaining our mission and vision and our commitment to equity in health service access, quality and outcomes.
Our vision: Consumers at the centre of health in South Australia
Our mission: We engage consumers and health services to achieve quality, safe, consumer-centred care for all South Australians.
The Board is very clear that HCA is here to stay and we are thinking well beyond 1 July 2019. We are working with staff to scope opportunities and options. We are also reaching out to stakeholders and supporters. As advised last year, we anticipate calling a Special Meeting of members next month to seek guidance on the options that the Board and staff are proposing.
The Parliamentary Committee on Occupational Safety, Rehabilitation and Compensation is conducting an inquiry into Workplace Fatigue and Bullying in South Australian Hospitals and Health Services. HCA was invited to make a submission in contribution to the inquiry. Studies have shown that health services working effectively and using a person-centred care approach can lead to improved workforce attitudes and job satisfaction, decreased emotional stress, decreased workforce turnover, and absenteeism and improved overall workforce wellbeing.
Read our submission here
HCA, along with industry stakeholders and consumer and community representatives and organisations, was invited to participate in a workshop to discuss a proposed Caring Futures Institute. The proposed vision of the Institute is to create the first ever fully dedicated research institute for the study of self-care and caring solutions leading to better lives, better communities and better health systems. The Institute foresees four key themes of focus including Better Systems – health and social care systems and processes eg new models of care, new approaches to residential aged care; Better Communities – community involvement and participation eg working with disadvantaged groups, innovative technology; Better Lives – health and wellness eg healthy aging, babies and families, frailty and Better Care – care interventions – eg palliative care, integrated care models, relationship-centred care.
The workshop raised interesting challenges for discussion including establishing strong sustainable community partnerships, innovating funding models, priorities for action and codesign of this proposed new research institute.
HCA will continue to be part of this discussion to support consumer and community engagement and codesign of this new Institute and will provide ongoing information as it progresses. A copy of their brochure can be downloaded here.
The National Mesh Implant Forum will be held in Melbourne on Friday April 5, 2019, to consider all aspects of Australia’s mesh implant crisis.
The event will bring together mesh injured consumers, carers, regulators, politicians, health officials and consumer advocates to collaborate to consider best practice treatment models and explore regulatory changes to the way medical devices such as mesh are approved and monitored.
The forum will consider not only the impact of pelvic mesh implants, but the emerging parallel crisis involving men and women who have received mesh implants as treatment for hernia.
It is hosted by the Health Issues Centre, a not-for-profit organisation advocating to ensure the health system serves the best interests of consumers, and jointly convened by State Consumer Health Peak bodies and supported by State Health Departments.
Find out more about the event and register here
The Bleeding Edge Screening
When: Wednesday 1 May 2019 1pm to 4pm
Where: The Science Exchange, 55 Exchange Place, Adelaide
HCA are proud to host a screening of the award winning documentary, The Bleeding Edge.
The film looks at the $400 billion medical device industry and the profit-driven mind-set that rushes implanted devices into the marketplace without proper clinical trials. The screening will be followed by a panel and question and answer session. Afternoon tea will also be provided.
You can register for the event here.
Thursday 11 April 2019
9.30am to 4.00pm
SACOSS, 47 King William Rd, Unley
HCA's Engagement and Advocacy for Influence training is suited for experienced consumer advocates or representatives who have undertaken the Introduction to Consumer Advocacy course. Participants of this course will learn strategies to improve their effectiveness and develop confidence to take on leadership roles or opportunities to participate at a more strategic or governance level. Consumers completing this course will be eligible for endorsement for national consumer roles.
Register for training here.
Wednesday 27 March
11.00am - 3.00pm
Sonder, in partnership with the Adelaide Primary Health Network, is hosting the Closing the Gap Day at the Adelaide Showground. Admission is free for all ages. It aims to bring together people from the Aboriginal and Torres Strait Islander community to share information and take meaningful action in support of achieving Indigenous health equality by 2030. The event will also feature plenty of free activities for children, including a petting zoo, jumping castle, face painting and much more.
Find out more here.
Thursday 30 May 2019
The 2019 annual Choosing Wisely National Meeting will bring together policy makers, consumers and other health care stakeholders for an interactive discussion on the opportunities, challenges, and highlights of the Choosing Wisely initiative as it continues to grow. Early bird registration is open until Thursday 18 April.
Find out more and register here.