The Youth Mental Health Consultation Report documents the outcomes of a youth mental health consultation and research project which was undertaken during 2015-16 by Health Consumers AllianceSA (HCA) in collaboration with the Health Economics and Social Policy Group (HESPG) at the University of South Australia.
The aim of the project was to speak with young people about their experiences of mental health care, and hear their perspectives on how pathways to care and service design could be improved. The project highlighted a diverse range of views about the experience of careand focused on participant’ssuggestions and ideas of how services may be better designed and promoted in the future.
HCA and HESPG would like to acknowledge and thank the young people who participated in this project and generously shared their experience. We also thank the many organisations who connected with us to help the young participants to be involved. The full report is available below.
Reducing the gap between research, policy and practice - report available
The latest report from the Reducing the Gap Breakfast Conversation which focused on including consumers’ voices in designing, undertaking and translating research. This interactive event encouraged exchange between researchers, clinicians, policy makers and consumers about their personal and practical challenges experienced in addressing research-policy-practice gaps.
The summary report is available here
Health Consumers Alliance (HCA) Strategic Directions 2012-16 and SA Health Service Agreement 2013-16 identified a need for HCA to develop a processes for the effective engagement of members of vulnerable communities in its representative and consultative functions. In response to this need HCA has undertaken a research project ‘A Framework of Engagement Practice with Vulnerable South Australian Communities’. The findings are outlined in the report, available below.
SA Mental Health Commission HCA Forum - report available
Stephen Christley, the interim Mental Health Commissioner was the key speaker at this forum and provided an overview of the Commission's role and opportunities before it. Michael Cousins, HCA Chief Executive led an interactive session of questions, suggestions and advice from the participants. We had over 50 people attending; representing consumer, carer, government, non-government, service delivery, clinical and research sectors.
A copy of the summary report on the forum is available here
In 2015, staff from the University of South Australia and Health Consumers Alliance started talking with young people (12-25) about their experiences of using mental health services in South Australia. The goal was to make recommendations on how to build a mental health system that was better suited to the needs of young people. as the project is finishing up read what we have learnt so far.
HCA is working with the Women’s and Children’s Health Network to develop an innovative and evidence-based Consumer and Community Engagement Strategy for the Network. This will be a strategy and plan that contains many quality improvement activities to encourage consumers and community representatives to participate in decision making.
A wide range of research indicates that involving consumers in their own care, as well as in the design of services, results in improved health outcomes.
The project has been guided by a Project Advisory Group (PAG) which includes consumers, community members, WCHN staff and project leaders. There is also a Project Management Group (PMG) consisting of HCA and WCHN staff to complete the detailed work of developing the Strategy. The Project Sponsor is Adjunct Associate Professor Naomi Dwyer, Chief Executive Officer of the WCHN. Dr Anne Johnson, well known to many HCA members, is a consultant to the project and working alongside Michael and myself within the HCA team.
The March edition of the RAH Update is now available. It includes a look at ‘Technical Completion’ and what that means. You can view and download the update below.
The Consumers Health Forum of Australia have released a media statement calling for more responsive community health services which embrace mental health services designed with consumers, not more reviews. You can read the statement here.
The purpose of the colloquium, organised by the Consumers Health Forum of Australia, Mental Health Australia and the National Rural Health Alliance, was to provide the opportunity for consumers, particularly emerging advocates, to join a day of talking and listening about strengthening the role of the consumer in shaping health care. You can read more about the colloquium on their latest blog post here.
Lynch Syndrome Australia has released Lynch syndrome: Australia’s untold health story, a report that calls for a number of important recommendations to improve diagnosis, risk management and support. It draws on the findings of a world-first study of the lived experience of people with Lynch syndrome and outlines responses from the 251 Australian participants. You can find out more and download the report here.
The new Royal Adelaide Hospital (RAH) has achieved Technical Completion, a significant milestone in the delivery of SA’s world-class new hospital. Over the last five years, the new Royal Adelaide Hospital (RAH) has taken shape over the Adelaide CBD skyline and now is your chance to take a first look inside. The virtual tour shows you through a range of key areas including the Emergency Department, patient bedrooms, the main public entrance on level 3 and car parking facilities. the new RAH will set a benchmark for hospitals of the future and continue the long and proud tradition of providing the best possible care for all South Australians. You can view the video here.
Tuesday 4 April 2017
Sunday 9 April 2017
1pm – 5pm University of Adelaide
PainAustralia in collaboration with South Australian healthcare consumer organisations is hosting the annual Living Well with Pain Consumer Symposium in conjunction with the Australian Pain Society’s Annual Scientific Conference. The symposium will bring the issue of pain management to the forefront for health professionals, consumers and other stakeholders in South Australia. If you live with pain or have an interest in in this area of medicine, you can find out more and register to attend online here. The full flyer is available below.
Tuesday 4 April 2017
Introduction to Consumer Advocacy training is coming to Nuriootpa this April. HCA provides training to consumers who have an interest in becoming health consumer advocates. The free training aims to assist participants to become an effective voice as advocates, and be active contributors in shaping the health system in South Australia. If you would like to participate in Introduction to Consumer Advocacy training to prepare yourself for a consumer advocate role, or as a refresher for established consumer advocates, you can find out more, including details about registration in the flyer attached below.
Saturday 8 April 2017
10am – 2pm
Consumers are invited to attend the Open Day at the new Rehabilitation Centre at Modbury Hospital. The Rehabilitation Centre is part of the $32 million investment in Modbury Hospital under Transforming Health and will enable the hospital to double the number of rehabilitation patients seen each year. The Open Day will include tours and demonstrations of the new facilities, a sausage sizzle and face painting. You can find out more here.
Wednesday 3 May 2016
12.30pm – 2.30pm (light lunch at 12pm)
At each meeting of the Consumer Advocates Network, we include a specific topic for discussion or learning. The topic for the May meeting is medical records, followed by other meeting agenda items from 2pm. We welcome your attendance at the May meeting to learn about the Enterprise Patient Administration System (EPAS) and My Health Record, including:
• an overview of EPAS and My Health Record
• how EPAS and My Health Record relate to each other and records systems
• security and access issues
• managing Advanced Care Directives and end of life decisions.
You can register to attend here.