The Youth Mental Health Consultation Report documents the outcomes of a youth mental health consultation and research project which was undertaken during 2015-16 by Health Consumers AllianceSA (HCA) in collaboration with the Health Economics and Social Policy Group (HESPG) at the University of South Australia.
The aim of the project was to speak with young people about their experiences of mental health care, and hear their perspectives on how pathways to care and service design could be improved. The project highlighted a diverse range of views about the experience of careand focused on participant’ssuggestions and ideas of how services may be better designed and promoted in the future.
HCA and HESPG would like to acknowledge and thank the young people who participated in this project and generously shared their experience. We also thank the many organisations who connected with us to help the young participants to be involved. The full report is available below.
Health Consumers Alliance (HCA) Strategic Directions 2012-16 and SA Health Service Agreement 2013-16 identified a need for HCA to develop a processes for the effective engagement of members of vulnerable communities in its representative and consultative functions. In response to this need HCA has undertaken a research project ‘A Framework of Engagement Practice with Vulnerable South Australian Communities’. The findings are outlined in the report, available below.
In 2015, staff from the University of South Australia and Health Consumers Alliance started talking with young people (12-25) about their experiences of using mental health services in South Australia. The goal was to make recommendations on how to build a mental health system that was better suited to the needs of young people. as the project is finishing up read what we have learnt so far.
Reducing the gap between research, policy and practice - report available
The latest report from the Reducing the Gap Breakfast Conversation which focused on including consumers’ voices in designing, undertaking and translating research. This interactive event encouraged exchange between researchers, clinicians, policy makers and consumers about their personal and practical challenges experienced in addressing research-policy-practice gaps.
The summary report is available here
SA Mental Health Commission HCA Forum - report available
Stephen Christley, the interim Mental Health Commissioner was the key speaker at this forum and provided an overview of the Commission's role and opportunities before it. Michael Cousins, HCA Chief Executive led an interactive session of questions, suggestions and advice from the participants. We had over 50 people attending; representing consumer, carer, government, non-government, service delivery, clinical and research sectors.
A copy of the summary report on the forum is available here
HCA is working with the Women’s and Children’s Health Network to develop an innovative and evidence-based Consumer and Community Engagement Strategy for the Network. This will be a strategy and plan that contains many quality improvement activities to encourage consumers and community representatives to participate in decision making.
A wide range of research indicates that involving consumers in their own care, as well as in the design of services, results in improved health outcomes.
The project has been guided by a Project Advisory Group (PAG) which includes consumers, community members, WCHN staff and project leaders. There is also a Project Management Group (PMG) consisting of HCA and WCHN staff to complete the detailed work of developing the Strategy. The Project Sponsor is Adjunct Associate Professor Naomi Dwyer, Chief Executive Officer of the WCHN. Dr Anne Johnson, well known to many HCA members, is a consultant to the project and working alongside Michael and myself within the HCA team.
Last Thursday HCA hosted researchers Dr Ray Moynihan and Professor Lisa Bero from Bond University and Sydney University for a consumer workshop. The workshop was one in a series of national workshops with consumers about the issue of financial conflicts of interests with a focus on relationships with drug companies. The workshop covered the financial relationships between research funders and clinicians or researchers and the impact on outcomes. The group also discussed why conflict of interests matter and how these conflicts can become risks to studies and how to be more transparent with this information. HCA was pleased to host such a dynamic and engaging workshop.
HCA will share the findings of this study when it becomes available.
HCA will close for the Christmas period, Monday 24 December 2018 and reopening on Monday 7 January 2019. Next week's eNews will be our last for 2018 and will be a short wrap up of the year.
The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.
There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.
SA Health has established the SA Health Pelvic Mesh Clinic at Royal Adelaide Hospital, a specialist clinic for women experiencing complications from pelvic mesh. The clinic aims to provide comprehensive multidisciplinary health care for all South Australian women experiencing major complications related to pelvic mesh implants. The clinic brings together experts from various health backgrounds and disciplines to work together as a team to review each patient’s individual case. A GP referral is required to access the clinic. Information for consumers and GPs is available here.
The Pelvic Mesh Consumer Support Line: 1800 66 MESH (1800 666 374) remains in operation for consumers requiring information about transvaginal mesh, operating between 9am and 4pm Monday to Friday (excluding public holidays).
The Australian Commission on Safety and Quality in Health Care released the Third Australian Atlas of Healthcare Variation. The goals of the Atlas series are to map variation in health care across Australia, promote investigation to identify any unwarranted variation and recommend actions to reduce unwarranted variation.
The Commission released the first Atlas in November 2015. This was followed by the release of the second Atlas covering different topics in June 2017. The third Atlas was launched by the Hon Greg Hunt MP on 11 December 2018.
You can view the report here.
Head to Health is an online portal that helps Australians find appropriate mental health resources. The website has compiled resources from national mental health services such as beyond blue and the black dog insitute as well as universities across Australia into one space to make it easier for Australians to find the right information. You can search for specific resources to suit you, for example if you search for bipolar, several fact sheets and websites specific to bipolar will show with information on how to access support. There is also information for loved ones and carers, with accessible information and steps on how to effectively support someone experiencing mental health challenges.
You can visit the site here.
24 - 27 March 2019
Everything you need to refresh your energy and passion for improving the health of people in rural and remote Australia is there; including:
Register here before 31 December 2018 to take advantage of the discounted Earlybird registration rate.