Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

HCA has now completed its work creating a set of guidelines for the participation of consumers in health in South Australia.

The task of consulting with a diverse range of consumers and groups has now been completed with the release of the 12 guidelines which HCA believes should be in place for any consumer and community participation in health in South Australia.

Comments on a background discussion paper prepared by HCA were gathered and collated following a series of forums with consumers and consumer organisations held during February 2008. A set of draft guidelines was then developed for consideration by representatives from specific disadvantaged population groups including the youth, aboriginal and homeless sectors. This second consultation process provided especially valuable insight into both the content of the guidelines and helped create the format in which they are now presented. Consumers were clear that the guidelines needed to written very simply. They needed to be brief, easy to refer to and able to be presented on a single page. The possibility now exists for these guidelines to be visually adapted for specific groups and translated into different languages where desirable.

Consumers and consumer groups are welcome to use the guidelines as required.

  • Participation means the right to be involved in decision making processes. South Australians want a variety of opportunities to participate in health which go beyond surveys or the consumer representative approach.
  • Consumers are individuals, groups or communities who may receive health care services. Carers have a special role in participating in the health care of others and may have special needs themselves.
  • Consumers expect their voice to be listened to and their views respected. When this happens consumers will see actions and changes as a result of their participation.
  • Consumer input into any health decisions, large or small, should be automatic.
  • Encouragement and recognition of consumer participants is vital. For this to happen participants require clear and honest communication.
  • Participation activities need to be reviewed to assess if they are effective.
  • The costs of participation need to be funded. Consumers need payment for the time and costs when participating on Government committees.
  • Consumers want a broad definition of health. Health is about wellbeing not just illness, it is about the whole person not just a disease. Healthy environments, access to transport and the dentist are just as essential for good health as hospitals.
  • Health inequality is of real concern to consumers. They understand the links between inequality in society and inequality in health. Disadvantaged groups need to be reached out to encourage their participation.
  • Health care should be easily available for all regardless of where you live, your income, gender, race or age.
  • Health information needs to be plainly written so it can be understood by all.
  • The use of technology should not be a barrier to consumers who want to participate in decision making processes.

Latest news

March 2017: New RAH Update

The March edition of the RAH Update is now available. It includes a look at ‘Technical Completion’ and what that means. You can view and download the update below.

March 2017: RAH Update

CHF: Local communities crying out for more action on mental health, not more reviews.

The Consumers Health Forum of Australia have released a media statement calling for more responsive community health services which embrace mental health services designed with consumers, not more reviews. You can read the statement here.

CHF Blog post: After the Colloquium: Connecting Consumers.

The purpose of the colloquium, organised by the Consumers Health Forum of Australia, Mental Health Australia and the National Rural Health Alliance, was to provide the opportunity for consumers, particularly emerging advocates, to join a day of talking and listening about strengthening the role of the consumer in shaping health care. You can read more about the colloquium on their latest blog post here.

Lynch Syndrome Australia Report released

Lynch Syndrome Australia has released Lynch syndrome: Australia’s untold health story, a report that calls for a number of important recommendations to improve diagnosis, risk management and support. It draws on the findings of a world-first study of the lived experience of people with Lynch syndrome and outlines responses from the 251 Australian participants. You can find out more and download the report here.

 

First look inside the new Royal Adelaide Hospital

The new Royal Adelaide Hospital (RAH) has achieved Technical Completion, a significant milestone in the delivery of SA’s world-class new hospital. Over the last five years, the new Royal Adelaide Hospital (RAH) has taken shape over the Adelaide CBD skyline and now is your chance to take a first look inside. The virtual tour shows you through a range of key areas including the Emergency Department, patient bedrooms, the main public entrance on level 3 and car parking facilities. the new RAH will set a benchmark for hospitals of the future and continue the long and proud tradition of providing the best possible care for all South Australians. You can view the video here.


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Events

Preoperative assessment for elective surgery workshop

Tuesday 4 April 2017

The aim of the Preoperative assessment for elective surgery workshop is to develop a consistent, standardised approach to care. The workshop will be held between 2pm – 4pm at the Pavilion on the park. To register or find out more, email This email address is being protected from spambots. You need JavaScript enabled to view it.

Living well with pain: Consumer Symposium

Sunday 9 April 2017

1pm – 5pm University of Adelaide

PainAustralia in collaboration with South Australian healthcare consumer organisations is hosting the annual Living Well with Pain Consumer Symposium in conjunction with the Australian Pain Society’s Annual Scientific Conference. The symposium will bring the issue of pain management to the forefront for health professionals, consumers and other stakeholders in South Australia. If you live with pain or have an interest in in this area of medicine, you can find out more and register to attend online here. The full flyer is available below.

Flyer: Living well with pain

Introduction to Consumer Advocate Training: Nuriootpa

Tuesday 4 April 2017

Introduction to Consumer Advocacy training is coming to Nuriootpa this April. HCA provides training to consumers who have an interest in becoming health consumer advocates. The free training aims to assist participants to become an effective voice as advocates, and be active contributors in shaping the health system in South Australia. If you would like to participate in Introduction to Consumer Advocacy training to prepare yourself for a consumer advocate role, or as a refresher for established consumer advocates, you can find out more, including details about registration in the flyer attached below.

Nuriootpa: CAT Flyer

Modbury Hospital Rehabilitation Centre – Open Day

Saturday 8 April 2017
10am – 2pm

Consumers are invited to attend the Open Day at the new Rehabilitation Centre at Modbury Hospital. The Rehabilitation Centre is part of the $32 million investment in Modbury Hospital under Transforming Health and will enable the hospital to double the number of rehabilitation patients seen each year. The Open Day will include tours and demonstrations of the new facilities, a sausage sizzle and face painting. You can find out more here.

 

Consumer Advocates Network Meeting

Wednesday 3 May 2016

12.30pm – 2.30pm (light lunch at 12pm)

At each meeting of the Consumer Advocates Network, we include a specific topic for discussion or learning. The topic for the May meeting is medical records, followed by other meeting agenda items from 2pm. We welcome your attendance at the May meeting to learn about the Enterprise Patient Administration System (EPAS) and My Health Record, including:
• an overview of EPAS and My Health Record
• how EPAS and My Health Record relate to each other and records systems
• security and access issues
• managing Advanced Care Directives and end of life decisions.

You can register to attend here.

email us at This email address is being protected from spambots. You need JavaScript enabled to view it. or call 08 8231 4169 for more information.

 


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