Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

HCA has now completed its work creating a set of guidelines for the participation of consumers in health in South Australia.

The task of consulting with a diverse range of consumers and groups has now been completed with the release of the 12 guidelines which HCA believes should be in place for any consumer and community participation in health in South Australia.

Comments on a background discussion paper prepared by HCA were gathered and collated following a series of forums with consumers and consumer organisations held during February 2008. A set of draft guidelines was then developed for consideration by representatives from specific disadvantaged population groups including the youth, aboriginal and homeless sectors. This second consultation process provided especially valuable insight into both the content of the guidelines and helped create the format in which they are now presented. Consumers were clear that the guidelines needed to written very simply. They needed to be brief, easy to refer to and able to be presented on a single page. The possibility now exists for these guidelines to be visually adapted for specific groups and translated into different languages where desirable.

Consumers and consumer groups are welcome to use the guidelines as required.

  • Participation means the right to be involved in decision making processes. South Australians want a variety of opportunities to participate in health which go beyond surveys or the consumer representative approach.
  • Consumers are individuals, groups or communities who may receive health care services. Carers have a special role in participating in the health care of others and may have special needs themselves.
  • Consumers expect their voice to be listened to and their views respected. When this happens consumers will see actions and changes as a result of their participation.
  • Consumer input into any health decisions, large or small, should be automatic.
  • Encouragement and recognition of consumer participants is vital. For this to happen participants require clear and honest communication.
  • Participation activities need to be reviewed to assess if they are effective.
  • The costs of participation need to be funded. Consumers need payment for the time and costs when participating on Government committees.
  • Consumers want a broad definition of health. Health is about wellbeing not just illness, it is about the whole person not just a disease. Healthy environments, access to transport and the dentist are just as essential for good health as hospitals.
  • Health inequality is of real concern to consumers. They understand the links between inequality in society and inequality in health. Disadvantaged groups need to be reached out to encourage their participation.
  • Health care should be easily available for all regardless of where you live, your income, gender, race or age.
  • Health information needs to be plainly written so it can be understood by all.
  • The use of technology should not be a barrier to consumers who want to participate in decision making processes.

Latest news

Senate Report on Transvaginal Mesh released

The Senate Report on The number of women in Australia who have had transvaginal mesh implants and related matters was released on 28 March 2018. Australia’s state and territory based health consumer organisations have welcomed the recognition of the extent and impact of harm to women, and the recommendations contained in the Senate report. You can find their media release, together with a joint media release by Pelvic Mesh Support Groups across Australia, and links to the Senate Report and further information here.

#hellomynameis Campaign

The “hello my name is” campaign was created by Dr Kate Granger MBE, a doctor in the UK who had terminal cancer. Together with her husband Chris Pointon, Dr Granger started the campaign in August 2013, asking frontline national health service staff to make a pledge to introduce themselves in future to their patients. She used social media to help kick start the campaign and created the hashtag #hellomynameis. Last week Health Consumers Forum of Australia (CHF) and The Australian Healthcare and Hospitals Association (AHHA) co-hosted the #hellomynameis Comes to Canberra Webinar, which you can view

Hospital-acquired complications information kit supporting safety and quality

The Australian Commission on Safety and Quality in Healthcare, in consultation with clinical experts from across Australia, has developed the hospital-acquired complications information kit. This kit has been developed to improve the safety and quality of health services, and outcomes for Australian patients. The kit also provides insights for consumers on health service activities relating to safety and quality. You can find out more here.

HealthPathways South Australia goes live

HealthPathways South Australia is a free online portal for GPs, practice nurses and other health professionals. It provides them with easy access to comprehensive, evidence-based clinical information, and local referral resources relevant to patient care. With the recent launch of HealthPathways in SA, consumers may see their health providers using this portal. More information and a video that explains HealthPathways South Australia is available here.

Appointment of new HCA CE, Julia Overton

HCA Board Chair Debra Kay PSM is delighted to announce the appointment of our new Chief Executive, Ms Julia Overton. Julia will commence in the role on 23 April 2018. Julia has spent the majority of her career working within the health system in South Australia, with a focus on the social determinants of health and equity. She is an experienced executive, having held senior positions within primary health services and Local Government, as well as management experience in small business. You can read more about Julia below. Julia is looking forward to working closely with our members and partners, consumers and communities, to strengthen the position of consumers at the centre of health in South Australia. 

Julia Overton Biography


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Events

Asthma Masterclass

Monday 9 April 2018
10am - 11.30am

Asthma Foundation SA, Hilton

Would you like to learn to live well with asthma? Asthma Masterclasses aim to increase your knowledge and confidence in managing asthma. Learning more about what asthma is and how to respond to symptoms will help you feel in control of your condition. Learn more about the medications, how to use them and when. We also look at worsening asthma, and teach Asthma First Aid. This is essential information for everyone with asthma, or those caring for others with asthma. You can find all training dates in 2018, Kids Asthma Masterclass details, and register to attend here.

Webinar: Difficult-to-treat and severe asthma - changing the paradigm

Tuesday 1 May 2018

7:00 – 8:00 pm (AEST)

NPS MedicineWise is hosting a webinar on difficult-to-treat and severe asthma. Many asthma sufferers experience uncontrolled asthma and poor outcomes, despite high-dose standard therapy. The webinar aims to explore new therapies which may improve the health outcomes for people who suffer severe asthma. An expert panel will convene for a multidisciplinary discussion on new therapies, and how to identify and manage difficult-to-treat and severe asthma. You can find out more and register here.

Webinar: Heavy menstrual bleeding: Delivering best practice forum

Monday 7 May 2018

9.30am – 3.00pm

The Australian Commission on Safety and Quality in Health Care invites consumers to participate in their upcoming webinar on the Heavy Menstrual Bleeding Clinical Care Standard (the Standard). The Standard was developed in response to significant variation in the rate of hysterectomy and endometrial ablation surgical procedures to treat heavy menstrual bleeding, as identified in both the first and the second Australian Atlas of Healthcare Variation. The webinar will provide participants the opportunity to learn more about the Standard. You can find out more and register to attend here.

7th Strong Aboriginal Children's Health Expo

Thursday 19 April 2018
11am - 3.00pm

Adelaide Entertainment Centre
 
SA Health DeadlyKidsSA, in partnership with Watto Purrunna Aboriginal Primary Health Care Service and Nunkuwarrin Yunti, is hosting this free expo in April. Aboriginal families are encouraged to come along for a day of healthy activities and information in a fun environment. Kids can complete the "My Deadly Health Journey" and receive a showbag! You can find out more and register to attend here

World Elder Abuse Awareness Day Conference

Friday 15 June 2018

8am - 4pm
Glenelg

This year's World Elder Abuse Awareness Day (WEAAD) Conference program has been developed with the theme around 'Prevention to Intervention'. The purpose of the WEAAD is to encourage communities to recognise the issues concerning abuse of older people, and for our society to create policies that promote dignity and respect for older people. The conference will demonstrate strategies developed and used by professionals in a variety of fields. You can find out more about the conference here.


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