Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

HCA has now completed its work creating a set of guidelines for the participation of consumers in health in South Australia.

The task of consulting with a diverse range of consumers and groups has now been completed with the release of the 12 guidelines which HCA believes should be in place for any consumer and community participation in health in South Australia.

Comments on a background discussion paper prepared by HCA were gathered and collated following a series of forums with consumers and consumer organisations held during February 2008. A set of draft guidelines was then developed for consideration by representatives from specific disadvantaged population groups including the youth, aboriginal and homeless sectors. This second consultation process provided especially valuable insight into both the content of the guidelines and helped create the format in which they are now presented. Consumers were clear that the guidelines needed to written very simply. They needed to be brief, easy to refer to and able to be presented on a single page. The possibility now exists for these guidelines to be visually adapted for specific groups and translated into different languages where desirable.

Consumers and consumer groups are welcome to use the guidelines as required.

  • Participation means the right to be involved in decision making processes. South Australians want a variety of opportunities to participate in health which go beyond surveys or the consumer representative approach.
  • Consumers are individuals, groups or communities who may receive health care services. Carers have a special role in participating in the health care of others and may have special needs themselves.
  • Consumers expect their voice to be listened to and their views respected. When this happens consumers will see actions and changes as a result of their participation.
  • Consumer input into any health decisions, large or small, should be automatic.
  • Encouragement and recognition of consumer participants is vital. For this to happen participants require clear and honest communication.
  • Participation activities need to be reviewed to assess if they are effective.
  • The costs of participation need to be funded. Consumers need payment for the time and costs when participating on Government committees.
  • Consumers want a broad definition of health. Health is about wellbeing not just illness, it is about the whole person not just a disease. Healthy environments, access to transport and the dentist are just as essential for good health as hospitals.
  • Health inequality is of real concern to consumers. They understand the links between inequality in society and inequality in health. Disadvantaged groups need to be reached out to encourage their participation.
  • Health care should be easily available for all regardless of where you live, your income, gender, race or age.
  • Health information needs to be plainly written so it can be understood by all.
  • The use of technology should not be a barrier to consumers who want to participate in decision making processes.

Latest news

Conflict of Interest Workshop

Last Thursday HCA hosted researchers Dr Ray Moynihan and Professor Lisa Bero from Bond University and Sydney University for a consumer workshop. The workshop was one in a series of national workshops with consumers about the issue of financial conflicts of interests with a focus on relationships with drug companies. The workshop covered the financial relationships between research funders and clinicians or researchers and the impact on outcomes. The group also discussed why conflict of interests matter and how these conflicts can become risks to studies and how to be more transparent with this information. HCA was pleased to host such a dynamic and engaging workshop.

HCA will share the findings of this study when it becomes available.

Reminder: Christmas Closure

HCA will close for the Christmas period, Monday 24 December 2018 and reopening on Monday 7 January 2019. Next week's eNews will be our last for 2018 and will be a short wrap up of the year.

The first edition of our 2019 eNews will be published on Wednesday 23 January 2019.

There is change ahead for the HCA team in 2019, and we take this opportunity to thank our supporters and members for your continued support throughout 2018.

Transvaginal Mesh Update - New clinic opens!

SA Health has established the SA Health Pelvic Mesh Clinic at Royal Adelaide Hospital, a specialist clinic for women experiencing complications from pelvic mesh. The clinic aims to provide comprehensive multidisciplinary health care for all South Australian women experiencing major complications related to pelvic mesh implants. The clinic brings together experts from various health backgrounds and disciplines to work together as a team to review each patient’s individual case. A GP referral is required to access the clinic. Information for consumers and GPs is available here.

The Pelvic Mesh Consumer Support Line: 1800 66 MESH (1800 666 374) remains in operation for consumers requiring information about transvaginal mesh, operating between 9am and 4pm Monday to Friday (excluding public holidays).

ACSQHC - Partnering with Consumers Third Australian Atlas of Healthcare Variation

The Australian Commission on Safety and Quality in Health Care released the Third Australian Atlas of Healthcare Variation. The goals of the Atlas series are to map variation in health care across Australia, promote investigation to identify any unwarranted variation and recommend actions to reduce unwarranted variation.

The Commission released the first Atlas in November 2015. This was followed by the release of the second Atlas covering different topics in June 2017. The third Atlas was launched by the Hon Greg Hunt MP on 11 December 2018.

You can view the report here.

Head to Health - Finding Mental Health Resources

Head to Health is an online portal that helps Australians find appropriate mental health resources. The website has compiled resources from national mental health services such as beyond blue and the black dog insitute as well as universities across Australia into one space to make it easier for Australians to find the right information. You can search for specific resources to suit you, for example if you search for bipolar, several fact sheets and websites specific to bipolar will show with information on how to access support. There is also information for loved ones and carers, with accessible information and steps on how to effectively support someone experiencing mental health challenges.

You can visit the site here.


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Latest eNews

Events

15th National Rural Health Conference

24 - 27 March 2019
Hobart Tasmania

Everything you need to refresh your energy and passion for improving the health of people in rural and remote Australia is there; including:

  • 4 days of inspiring presentations and events
  • 5 pre-conference events
  • 30 keynote speakers
  • 212 presenters in 45 concurrent sessions
  • 40 poster presentations
  • a stimulting arts and health program
  • 75 exhibitors
  • and a gala dinner!

Register here before 31 December 2018 to take advantage of the discounted Earlybird registration rate.


View all events

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