Phone: 08 8231 4169 | Email: info@hcasa.asn.au | Find HCASA on FacebookFollow HCASA on Twitter

Phone: 08 8231 4169
Email: info@hcasa.asn.au
Find HCASA on FacebookFollow HCASA on Twitter

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Consumers at the centre of health
in South Australia

HCA has now completed its work creating a set of guidelines for the participation of consumers in health in South Australia.

The task of consulting with a diverse range of consumers and groups has now been completed with the release of the 12 guidelines which HCA believes should be in place for any consumer and community participation in health in South Australia.

Comments on a background discussion paper prepared by HCA were gathered and collated following a series of forums with consumers and consumer organisations held during February 2008. A set of draft guidelines was then developed for consideration by representatives from specific disadvantaged population groups including the youth, aboriginal and homeless sectors. This second consultation process provided especially valuable insight into both the content of the guidelines and helped create the format in which they are now presented. Consumers were clear that the guidelines needed to written very simply. They needed to be brief, easy to refer to and able to be presented on a single page. The possibility now exists for these guidelines to be visually adapted for specific groups and translated into different languages where desirable.

Consumers and consumer groups are welcome to use the guidelines as required.

  • Participation means the right to be involved in decision making processes. South Australians want a variety of opportunities to participate in health which go beyond surveys or the consumer representative approach.
  • Consumers are individuals, groups or communities who may receive health care services. Carers have a special role in participating in the health care of others and may have special needs themselves.
  • Consumers expect their voice to be listened to and their views respected. When this happens consumers will see actions and changes as a result of their participation.
  • Consumer input into any health decisions, large or small, should be automatic.
  • Encouragement and recognition of consumer participants is vital. For this to happen participants require clear and honest communication.
  • Participation activities need to be reviewed to assess if they are effective.
  • The costs of participation need to be funded. Consumers need payment for the time and costs when participating on Government committees.
  • Consumers want a broad definition of health. Health is about wellbeing not just illness, it is about the whole person not just a disease. Healthy environments, access to transport and the dentist are just as essential for good health as hospitals.
  • Health inequality is of real concern to consumers. They understand the links between inequality in society and inequality in health. Disadvantaged groups need to be reached out to encourage their participation.
  • Health care should be easily available for all regardless of where you live, your income, gender, race or age.
  • Health information needs to be plainly written so it can be understood by all.
  • The use of technology should not be a barrier to consumers who want to participate in decision making processes.

Latest news

New model of governance and accountability in the public health system

The South Australian Government is introducing a new model of governance and accountability in the public health system. A cornerstone of the new model will be the introduction of governing boards for Local Health Networks. There will be ten governing boards in South Australia, one for each of the four current Local Health Networks (three metropolitan and one state-wide), and six governing boards covering the six new Local Health Networks in Country Health SA. Hon Stephen Wade MLC has asked HCA to provide feedback on the Health Care (Governance) Amendment Bill 2018, as changes to legislation are required to implement the board governance structure.

The South Australian public health system will commence its transition to board governance with the appointment of board Chairs by 31 July 2018. You can find more information on the application process here. This is the first step in developing a robust, sustainable board governance model. Governing board member appointments will occur later in 2018, followed by training and induction in anticipation of boards being fully operational from 1 July 2019. You can view the Health Care (Governance) Amendment Bill 2018 and the second reading below. If you have any feedback on the amendment bill that you would like HCA to consider for inclusion in our submission, please email This email address is being protected from spambots. You need JavaScript enabled to view it..

Health Governance Amendment Bill 2018 UN (003)

Second Reading Health Care Governance Amendment Bill 2018 (003)

A new report is calling for an expansion of specialist targeted services for older Aboriginal and Torres Strait Islander people

The Australian Association of Gerontology (AAG) in partnership with the Aboriginal and Torres Strait Ageing Advisory Group (ATSIAAG) have released a report: Assuring equity of access and quality outcomes for older Aboriginal and Torres Strait Islander peoples: What needs to be done. The report summarises the proceedings and outcomes of the 5th National Workshop of the AAG and ATSIAAG, held in Perth on 7 November 2017. The workshop aimed to address the apparent inequities of access and outcomes for older Aboriginal and Torres Strait Islander peoples under the current aged care reform program, and suggest directions for the future. You can download the full report here.

HCA Forum: Summary Framework for the State Public Health Plan 2019 - 2024

Health Consumers Alliance of SA Inc (HCA) held a consumer forum, Summary Framework for the State Public Health Plan 2019 - 2024, on Tuesday 29 May 2018. The objectives of the forum were to provide consumers the opportunity to:

1. learn more about the draft Plan and the role of public health
2. share their views about what a healthier South Australia looks like to them
3. help shape the development of the draft State Public Health Plan, which will set the direction for public health and wellbeing in South Australia over the next five years.

The event report can be found below. 

The draft State Public Health Plan 2019 – 2024 is available for download here.

Public Health Forum Report

ROSA Stage 1 Historical Cohort Report

The Registry of Older South Australians (ROSA) is the product of the Health Ageing Research Consortium, which is a cross sectoral partnership of researchers, consumers, aged care providers and consumer advocacy groups. HCA is a consortium partner and co-chair of the consumer engagement group. ROSA is a unique data resource that will support evidence-driven decision-making to improve the lives of all South Australians accessing aged care service. ROSA was designed to monitor the health, service utilisation, medication use, mortality and other outcomes of people receiving aged care services in South Australia. You can view the first ROSA report below. 

ROSA Report 1

Engaging consumers in their health data journey

Consumers Health Forum (CHF) in partnership with NPS MedicineWise have jointly published a comprehensive report on engaging consumers in their health data journey. The report was generated through qualitative interviews, literature reviews, a round table discussion with key stakeholders and consumer representatives, and a nationally representative survey of 1,013 Australians.The overall results indicate that Australians want control over their health data and information. You can find out more here.


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Events

Public Reporting Consumer & Community Forum

Thursday 5 July 2018

9.00am – 12.00pm
Level 1/12 Pirie Street, Adelaide

This forum is seeking input from consumers and carers not engaged with Local Health Networks. The purpose of this forum is to discuss principles of public reporting of health data, what data should be available, and how it should be reported. Morning tea will be provided. If you would like to attend, please RSVP to This email address is being protected from spambots. You need JavaScript enabled to view it. or telephone: (08) 8226 2567 to find out more.

11th Australian Viral Hepatitis Conference

Monday 13 – Wednesday 15 August 2018

Adelaide

The 11th Australasian Viral Hepatitis Conference will be hosted at the Adelaide Convention Centre this year with the theme ‘No one left behind’. The conference is inspired by the 2030 agenda for Sustainable Development and its focus on inclusion and health for all. The program will showcase and critically examine ways to effectively reach everyone living with viral hepatitis, while being inclusive of their experiences and concerns. There will be presentations on the latest research and an opportunity to network with peers. You can find out more and register here.

National Suicide Prevention Conference 2018

Monday 23 – Thursday 26 July 2018

Adelaide

The 2018 National Suicide Prevention Conference will be held at the Adelaide Convention Centre. The focus of the conference will centre around quality - in research, practice and speaking about lived experience. The program has been designed to to focus on quality as the foundation to enhance implementation of suicide prevention at the community level. You can find out more here.

The Mental Health Services Conference

Tuesday 28 – Friday 31 August 2018
Adelaide

Early bird registrations are open for the Mental Health Services (TheMHS) Conference. The Conference aims to provide a platform for debate that challenges present knowledge and ideas about mental health care and current mental health systems across Australia and New Zealand. There will be presentations from both public and private sectors of the mental health community. The theme of the conference promotes collaborative research, practice, policy-making and education. You can view the conference brochure here and register to attend here.

Australian Psychosis Conference

Friday 14 - Sunday 16 September 2018

Sydney

The Australian Psychosis Conference will bring together researchers, clinicians, consumers and carers, with an interest in best outcomes for people with psychotic illness. The conference will have parallel streams, covering the latest research, discussions on best practice and treatment, and debate on how to encourage recovery. You can find out more here.


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